14th Annual Allied Professionals Forum
Convention Centre Dublin | 6 December 2016
The Allied Professionals Forum is focused on practice and experience for health professionals in the care and support of people living with ALS/MND. During the APF, health professionals from around the globe come together to share their practical knowledge and experiences, with a mission to improve the quality of care for people living with ALS/MND worldwide. This all day seminar costs £100
Programme
| 8.30 | Welcome and Opening Remarks | Steve Bell & Sara Feldman | |
| 8.50 | About the International Alliance of ALS/MND Associations | Carol Birks | Australia |
| 9.00 | The ALS Assistive Technology Challenge: Winners | Lucie Bruijn | USA |
| 9.20 | Message Banking: Impact on Quality of Life of People with ALS/MND | Lesley Doyle | Ireland |
| 9.40 | Message Banking vs. Voice Banking: A Very Successful Proactive Model for People with ALS/MND | John M. Costello
| USA |
| 10.00 | The Development of a Voice Banking Volunteer | Louise Rickenbach | UK |
| 10.20 | Morning Tea | ||
| 10.50 | Cultivating Compassion: Caring for Families Living and Dying with ALS/MND | Ronald Hoffman
| USA |
| 11.10 | Adopting a New Way of Working to Support and Provide Information for Families Where a Parent/Guardian Has ALS/MND | Karen Welsenaer
| UK |
| 11.30 | The Carers’ Alert Thermometer (CAT): Identifying ALS/MND Carers’ Support Needs | Mary O’Brien
| UK |
| 11.50 | Well-Being and Care Burden of Close Relatives to Persons with ALS-FTD | Brigit J. Hovmand | Denmark |
| 12.10 | Lunch and Networking | ||
| 13.30 | What Do People Living with ALS/MND Think About Their Swallowing? | Dominika Lisiecka | Ireland |
| 13.50 | The Clinical Utility of a Self-Reported Swallowing Outcome Measure | Laurie Sterling
| USA |
| 14.10 | First Contact Group: An Anticipatory Approach to Palliative Care | Colin Pearson
| UK |
| 14.30 | Withdrawal of Mechanical Ventilation at Patient Request in ALS/MND | Alison Armstrong
| UK |
| 14.50 | Afternoon Tea | ||
| 15.20 | Mechanical Insufflation Exsufflation (M-IE) and Breath Stacking: The Patient’s Experience | Rachel McConnell | Ireland |
| 15.40 | Eyedriveomatic | Karen Pearce | UK |
| 16.00 | I Can Do It: The Impact of a One-Day Training Intervention on Occupational Therapist and Speech Pathologist Confidence in Working with Assistive Technology for Clients with ALS/MND | Kristina Dodds
| Australia |
| 16.20 | How You Can Use 3D Printing in Your Practice | Kevin Caves | USA |
| 16.40 | Close | Steve Bell & Sara Feldman |
Co-Chairs: Steve Bell, MND Association; Sara Feldman, ALS Hope Foundation
To register please follow this link: https://www.mndcommunity.org/APFregistration