Allied Health Professionals Forum Event Date:

14th Annual Allied Professionals Forum

Convention Centre Dublin | 6 December 2016

The Allied Professionals Forum is focused on practice and experience for health professionals in the care and support of people living with ALS/MND. During the APF, health professionals from around the globe come together to share their practical knowledge and experiences, with a mission to improve the quality of care for people living with ALS/MND worldwide. This all day seminar costs £100


8.30 Welcome and Opening Remarks Steve Bell & Sara Feldman
8.50 About the International Alliance of ALS/MND Associations Carol Birks Australia
9.00 The ALS Assistive Technology Challenge: Winners Lucie Bruijn USA
9.20 Message Banking: Impact on Quality of Life of People with ALS/MND Lesley Doyle Ireland
9.40 Message Banking vs. Voice Banking: A Very Successful Proactive Model for People with ALS/MND John M. Costello


10.00 The Development of a Voice Banking Volunteer Louise Rickenbach UK
10.20 Morning Tea
10.50 Cultivating Compassion: Caring for Families Living and Dying with ALS/MND Ronald Hoffman


11.10 Adopting a New Way of Working to Support and Provide Information for Families Where a Parent/Guardian Has ALS/MND Karen Welsenaer



11.30 The Carers’ Alert Thermometer (CAT): Identifying ALS/MND Carers’ Support Needs Mary O’Brien


11.50 Well-Being and Care Burden of Close Relatives to Persons with ALS-FTD Brigit J. Hovmand Denmark
12.10 Lunch and Networking
13.30 What Do People Living with ALS/MND Think About Their Swallowing? Dominika Lisiecka Ireland
13.50 The Clinical Utility of a Self-Reported Swallowing Outcome Measure Laurie Sterling


14.10 First Contact Group: An Anticipatory Approach to Palliative Care Colin Pearson


14.30 Withdrawal of Mechanical Ventilation at Patient Request in ALS/MND Alison Armstrong


14.50 Afternoon Tea
15.20 Mechanical Insufflation Exsufflation (M-IE) and Breath Stacking: The Patient’s Experience Rachel McConnell Ireland
15.40 Eyedriveomatic Karen Pearce UK
16.00 I Can Do It: The Impact of a One-Day Training Intervention on Occupational Therapist and Speech Pathologist Confidence in Working with Assistive Technology for Clients with ALS/MND Kristina Dodds




16.20 How You Can Use 3D Printing in Your Practice Kevin Caves USA
16.40 Close Steve Bell & Sara Feldman


 Co-Chairs: Steve Bell, MND Association; Sara Feldman, ALS Hope Foundation

To register please follow this link: