MND National Awareness Campaign

“Sometimes I think it is unfair that as well as dying young you have to waste away slowly,” Loretto Dempsey

MND National Awareness Campaign

Loretto Dempsey has Motor Neurone Disease (MND). In April she recorded Radio Adverts as part of a National Awareness initiative, kindly supported by SuperValu and Dublin Bus. The campaign aims to draw people’s attention to the difficulties someone with MND faces every day.

Loretto is 50 years old and only last March she was diagnosed with MND.  Loretto used to be a baker for over 10 years. She would spend all day in the kitchen, lifting bags of flour and making treats to feed an army.  Now she can’t move the fingers on her left hand and needs somebody to chop up her dinner and feed her.

“I am the same person I always was, I just know that I will be dead in a couple of years. Everyone has to die of something and if I had a heart attack I would be gone already. Just because I can’t physically do things doesn’t mean I can’t still enjoy what I can do. You can’t say “Actually I don’t want MND. I want to give it back thanks, I kept the receipt”, Loretto.

Loretto shares her story about her terminal disease in the hope that greater awareness will generate increased support for those living with this degenerative condition. Please take a minute to listen to Loretto’s story:

To join Loretto’s fight & help with this campaign:

You can organise a Drink Tea for MND event throughout the month of June. SuperValu have very generously sponsored the Tea packs so to register your event and to get your free SuperValu Tea pack, please email fundraising@imnda.ie or Freefone 1800 403 403.

or

To make a donation towards this campaign please Text MND to 50300 and donate €2. (Some network providers charge VAT, meaning a minimum of €1.63 will go to IMNDA. Service Provider LIKECHARITY 0766805278)

Michael Morgan, SuperValu Sales Director commented: “We at SuperValu believe that great things happen when food and people come together; it’s what we like to call Good Food Karma. So we are encouraging people to host a tea party with friends and family, as it is those moments that lift our spirits and bring people closer together – as well as raising funds for really worthy charity. SuperValu stores nationwide spend €2.8million annually supporting local community causes throughout Ireland, with over 4,300 local organisations supported each year and we are delighted that MND is one such charity.”

Listen out for the Radio adverts that will be airing from the 8th – 21st June and also keep an eye out on Dublin Bus for our awareness posters which will be visible from 5th – 19th June.

The IMNDA provides specialised services for people affected by this debilitating disease such as equipment on loan, financial assistance towards home help, advice and home visits by MND Nurse. In order to provide these vital services the IMNDA depends heavily on the generosity of the public and supporters of the association who generate over 86% of its income.

ENDS

For more information please contact the Communications & PR Dept.

Maeve Leahy/ Derbhla Wynne (01) 873 0422or email pr@imnda.ie

Notes to Editor:

Motor Neurone Disease (MND) is a progressive neurological condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.  MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.

The Irish Motor Neurone Disease Association (IMNDA) is the only organisation of its kind in this country. It was set up in May 1985 to provide care and support to people with Motor Neurone Disease, their carers, families and friends. There are currently over 320 people living with MND in Ireland. MND is often referred to as the 1,000 day disease as most people die within 1,000 days of being diagnosed.

IMNDA Tea day 4