Sometimes Silence Speaks Volumes
Imagine not being able to say ‘I Love You’. February is the month of love where couples from across the world openly celebrate their affection for each other. But imagine not being able to say ‘I Love You’ this Valentine’s Day. Most people with Motor Neurone Disease (MND) can’t. Between 80-95% of people living with MND will experience some loss of speech before they die.
Patrick (Padge) Kelly is 28 years old from Lucan in Dublin. Padge was diagnosed with MND in 2003 when he was 17. When he was in sixth year in school he noticed that his hand writing had become very messy and that he wasn’t as fast when he played football. One day when he was walking home from the shops with his Gran he found he couldn’t carry the bags for her.
“I went from a limp to needing a crutch to a wheelchair. I can’t move my arms or hands. The worst of all is that my tongue, mouth and diaphragm has also been affected which robbed me of my speech. I could deal with being disabled but not being able to communicate with family and friends was difficult to come to terms with”, said Padge.
Esther Tracey is 58 years old and was diagnosed with MND in 2013. Esther is an amazing cook, and runs her kitchen with the precision of a professional. She may have lost her swallow and speech to MND but that hasn’t dampened her appetite for life.
“The progressive symptoms which have left me without speech and swallow were daunting but with help from my family and friends I can communicate very well. Every challenging step along the way has consistently brought out the fighter in me and the support of the IMNDA has helped me to maintain a positive attitude to keep fighting this”, said Esther.
This February we’re asking you to take on a sponsored silence to experience what life is like for Esther and Padge. How would you cope not being able to communicate? Just pick a day, time and location where you will take on your sponsored silence and then contact us on firstname.lastname@example.org or 1800403403 for your Silence Sponsor pack.
Spread awareness by sharing your sponsored silence on social media by using #Voice4MND or change your profile picture to you holding our downloadable banner below!Voice4MND Banner 2016
Nominate friends and families to join you. Think of ways you can encourage others to get involved – nominate your boss or the worst chatter box you know! Set fines for people who break their silence and don’t forget to set up your online donation page www.mycharity.ie
Sometimes silence can speak volumes. Take on our challenge this February. Don’t let someone with MND suffer in silence; don’t let them live without a voice.