Allied Health Professionals Forum Event Date:

14th Annual Allied Professionals Forum

Convention Centre Dublin | 6 December 2016

The Allied Professionals Forum is focused on practice and experience for health professionals in the care and support of people living with ALS/MND. During the APF, health professionals from around the globe come together to share their practical knowledge and experiences, with a mission to improve the quality of care for people living with ALS/MND worldwide. This all day seminar costs £100


8.30Welcome and Opening RemarksSteve Bell & Sara Feldman
8.50About the International Alliance of ALS/MND AssociationsCarol BirksAustralia
9.00The ALS Assistive Technology Challenge: WinnersLucie BruijnUSA
9.20Message Banking: Impact on Quality of Life of People with ALS/MNDLesley DoyleIreland
9.40Message Banking vs. Voice Banking: A Very Successful Proactive Model for People with ALS/MNDJohn M. Costello


10.00The Development of a Voice Banking VolunteerLouise RickenbachUK
10.20Morning Tea
10.50Cultivating Compassion: Caring for Families Living and Dying with ALS/MNDRonald Hoffman


11.10Adopting a New Way of Working to Support and Provide Information for Families Where a Parent/Guardian Has ALS/MNDKaren Welsenaer



11.30The Carers’ Alert Thermometer (CAT): Identifying ALS/MND Carers’ Support NeedsMary O’Brien


11.50Well-Being and Care Burden of Close Relatives to Persons with ALS-FTDBrigit J. HovmandDenmark
12.10Lunch and Networking
13.30What Do People Living with ALS/MND Think About Their Swallowing?Dominika LisieckaIreland
13.50The Clinical Utility of a Self-Reported Swallowing Outcome MeasureLaurie Sterling


14.10First Contact Group: An Anticipatory Approach to Palliative CareColin Pearson


14.30Withdrawal of Mechanical Ventilation at Patient Request in ALS/MNDAlison Armstrong


14.50Afternoon Tea
15.20Mechanical Insufflation Exsufflation (M-IE) and Breath Stacking: The Patient’s ExperienceRachel McConnellIreland
15.40EyedriveomaticKaren PearceUK
16.00I Can Do It: The Impact of a One-Day Training Intervention on Occupational Therapist and Speech Pathologist Confidence in Working with Assistive Technology for Clients with ALS/MNDKristina Dodds




16.20How You Can Use 3D Printing in Your PracticeKevin CavesUSA
16.40CloseSteve Bell & Sara Feldman


 Co-Chairs: Steve Bell, MND Association; Sara Feldman, ALS Hope Foundation

To register please follow this link: