Join The International Alliance of ALS/MND Associations on January 25th for a webinar where they will cover some basics of clinical trials.
Education and Support
Recruitment for New Clinical Nurse Specialist for the Midlands
We are so thankful to Charlie and Claire Bird who dedicated all their time and energy to making their “Climb with Charlie” initiative so successful. It is their wish that monies raised for IMNDA go towards projects that make a real difference to those families affected by motor neurone disease in Ireland.
We have now established the “Charlie Bird Development Fund” and our first project is to provide a new role of Clinical Nurse Specialist for the midlands area. (more…)
Living with Loss – Free Online Bereavement Evening
The Irish Hospice Foundation is hosting a free online Bereavement Information evening at 7pm on December 8th. (more…)
Professor Orla Hardiman receives very presitigious Trinity Innovation Award
Our congratulations to Professor Hardiman on receiving this very presitigious award. (more…)
The Adore Study – Large European Clinical Trial
In-depth Series of MND Webinars for Occupational Therapy
We wanted to share with you some very important webinar dates for your diary. Accora are once again hosting an in-depth MND webinar with the esteemed Jenny Rolfe, MSc OT. A session will also be hosted by our very own Naomi Fitzgibbon, Director of Nursing and Services.
TRICALS response to the approved RELYVRIO Drug in America
TRICALS response to the approved RELYVRIO Drug for American Market. 
Food and Drug Administration (FDA) approves AMX0035 (Amylyx) for the American market.
During a meeting of the FDA’S Peripheral and Central Nervous System Drugs Advisory Committee (PCNSDAC) on Thursday September 29 2022, the Amylyx drug AMX0035 received conditional approval under the name RELYVRIO. This means that Relyvrio is available for American citizens. What does this approval mean and how does this affect patients in Europe?
Annual Conference Friday 7th October – online registration
We have the great pleasure of inviting you to our Annual Conference 2022, which will be held on Friday 7th October at the Charleville Park Hotel, Charleville, Co. Cork. We are delighted to be back having an in-person event. Although, if you are unable to be with us in person you can join us virtually. (more…)
Shapes of Grief Webinar
As part of Palliative Care Week 2022 (11 – 17 September), Liz Gleeson (Psychotherapist, host of Shapes of Grief podcast) and All Ireland Institute of Hospice and Palliative Care are delighted to invite you to a webinar: Shapes of Grief – an exploration of grief before & after death. This webinar is open to the general public across the island of Ireland. It will take place on Tuesday 13 September from 7-9pm. (more…)
HAVE YOUR SAY
HAVE YOUR SAY and take a few minutes to complete our survey. Tell us about your personal access to services and support for your neurological condition. (more…)
Living Well Building Better Caregivers 2022
‘Living Well Building Better Caregivers’ is a six week course that provides caregivers with the necessary skills to build confidence and manage caregiving tasks and maintain a fulfilling life. (more…)
2022 World Brain Day
World Brain Day takes place on 22nd July and the theme this year is ‘Brain Health for All’
Awareness: Brain health is vital for mental, social and physical wellbeing
Advocacy: Global efforts are required for optimal brain health
Education: Education for all is key for brain health
Access: Equitable access to resources, treatment and rehabilitation is essential for brain health
Guide My Way – Interactive Service for People with Reduced Mobility
Guide My Way – Dublin Airport
The Dublin Airport Future Factory team are looking for passengers arriving through Dublin airport this summer to try out their new interactive service. The Future Factory is Dublin Airport’s innovation and business development function.
The Future Factory Team carried out research and they saw the arriving journey doesn’t offer enough support to the PRM (Person with Reduced Mobility) passenger or those with additional needs. So, after a lot more research and discussions they came up with Guide My Way, an interactive digital service.
NEURO2020/22 Global Summit
On Global MND Awareness this June, Prof Orla Hardiman was in #Salamanca in Spain, talking about #MND research in Ireland & in Europe at the #NEURO2020/22 Global Summit, the international landmark meeting for advances in #neurodegenerative disease research.
For more, please visit https://neuro2020.com/
Patients Deserve Better Campaign
Over thirty TDs and Senators attended a briefing on the Patients Deserve Better Campaign organised by the Neurological Alliance of Ireland on Wednesday 15th June.