IMNDA and Wheelchairs
- Freedom and independence come in so many different forms
- “It’s my best friend”
- Manoeuvrability – “It turns on a sixpence”
IMNDA and Wheelchairs
“To say my world was turned upside-down that day in clinic is an understatement. I was expecting bad news, but the diagnosis came as a terrible shock. Some days, even now, I stop and ask myself has this actually happened,” ~ Person with MND
A diagnosis of motor neurone disease is life changing. For many people, it comes as a devastating blow, both to the person diagnosed and their loved ones. It’s normal to feel very distressed around the time of diagnosis. It brings shock and often profound sadness. For many, it comes at a time in life when they were preparing to enjoy retirement. For others, it arrives when they are in the middle of their working life and raising young families. Grief at the loss of the future you thought was ahead can hit like a tidal wave. (more…)
Are you a caregiver?
Building Better Caregivers: classes are highly participatory, where mutual support and success build the participants’ confidence in their ability to manage their caregiving tasks and maintain a fulfilling life (more…)
Back in March 2020, the Health Research Board (HRB) in cooperation with the Irish Research Council (IRC) launched the COVID-19 Rapid Response Call to fund research to provide evidence for the national and global efforts to deal with the virus outbreak. The funding process was a highly competitive one and several awards were received by Trinity investigators. (more…)
Ireland is currently rolling out a Covid-19 vaccination programme. Presently there are three licensed vaccines being used; the Pfizer-BioNTech, Moderna and AstraZeneca vaccines.
Everyone with a chronic neurological condition should continue to follow government advice to reduce the risk of catching and transmitting COVID-19 even if they have received a vaccine for COVID-19. (more…)
The IMNDA helps people who have been diagnosed with MND/ALS in a variety of ways. It supplies mobility aids to those who cannot walk unaided, communication devices to those who cannot talk, and care packages to people who need assistance with personal or home care. (more…)
The past year has seen a lot of changes in our lives, but one service has remained steady and constant during all the chaos. Our Nursing Service.
Here, one of our fab four, Eithne Cawley speaks about nursing during the pandemic and the importance of our Sponsored Silence Campaign #Voice4MND.
She explores the symptoms and emotions associated with speech loss and how our services can help. (more…)
“Taking care of yourself doesn’t mean me first, it means me too,” L.R. Knost
Staying well while supporting a loved one with MND takes real effort. Oftentimes caregivers’ own needs get put on hold because of the demands of the condition. The pandemic has also deprived families of key supports and social contact. As the COVID-19 crisis rumbles on, self-care has never been more important for caregivers. (more…)
Every November, the Irish Childhood Bereavement Network (ICBN) organises a series of events across Ireland to highlight bereaved children’s needs and provide a voice for them to be heard. (more…)
Are you the family carer of a person who has been diagnosed with MND?
Do you provide any assistance to a loved one to help them eat and drink?
Are you interested in taking part in a study exploring your experience of mealtime with your
family member who has MND?
The IMNDA is hosting it’s AGM and Annual Conference 2019 on Friday 4th October at the Hodson Bay Hotel, Athlone.
The Annual Conference will feature a variety of speakers including a member of Professor Orla Hardiman’s MND Research team. Lunch will end the day’s formal business.
If you are interested in attending or would like to find out more please email email@example.com or call Tracy on 01 873 0422.
Do you know about our Recharge Grant? This amazing grant offers people with MND and their loves ones the opportunity to have a break from their usual routine and enjoy some quality time together. (more…)
We have recently put together a new information booklet called ‘An Introduction to Motor Neurone Disease (MND)’. This new booklet presents information on MND in simple terms and in a way that is easy to break down and understand. (more…)
Please see the below document on how the Budget 2018 will affect family carers. (more…)
A Study Day for Healthcare Professionals
Managing MND: The Impact of Cognitive and Behavioural Change
The Motor Neurone Disease Research Group at Beaumont Hospital and Trinity College is developing an educational programme for Healthcare professionals treating patients and families of people with MND. (more…)