Every November, the Irish Childhood Bereavement Network (ICBN) organises a series of events across Ireland to highlight bereaved children’s needs and provide a voice for them to be heard. (more…)
Are you the family carer of a person who has been diagnosed with MND?
Do you provide any assistance to a loved one to help them eat and drink?
Are you interested in taking part in a study exploring your experience of mealtime with your
family member who has MND?
The IMNDA is hosting it’s AGM and Annual Conference 2019 on Friday 4th October at the Hodson Bay Hotel, Athlone.
The Annual Conference will feature a variety of speakers including a member of Professor Orla Hardiman’s MND Research team. Lunch will end the day’s formal business.
If you are interested in attending or would like to find out more please email email@example.com or call Tracy on 01 873 0422.
Do you know about our Recharge Grant? This amazing grant offers people with MND and their loves ones the opportunity to have a break from their usual routine and enjoy some quality time together. (more…)
We have recently put together a new information booklet called ‘An Introduction to Motor Neurone Disease (MND)’. This new booklet presents information on MND in simple terms and in a way that is easy to break down and understand. (more…)
Please see the below document on how the Budget 2018 will affect family carers. (more…)
A Study Day for Healthcare Professionals
Managing MND: The Impact of Cognitive and Behavioural Change
The Motor Neurone Disease Research Group at Beaumont Hospital and Trinity College is developing an educational programme for Healthcare professionals treating patients and families of people with MND. (more…)
Behavioural Changes in MND: What Families Need to Know
The Irish Motor Neurone Disease Research Group at Beaumont Hospital and Trinity College is developing an educational programme for families of people with MND. The purpose is to help those affected by MND to recognize the thinking, behaviour and personality changes that can occur as part of the condition, to identify how best to understand these, to help those affected by these changes to manage problems that might arise, and to take care of their own health and wellbeing. (more…)
27th Annual International Symposium for ALS/MND is coming to Dublin!
The International Alliance holds the Annual Alliance Meeting to provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. (more…)
Findings from the first published audit of neurology services in Ireland, launched on Tuesday 15th February 2016, point to widespread deficits in neurology services across the country. The audit, based on reports from each of the eleven neurology centres nationwide was carried out in 2015 as part of a joint collaboration between the Neurological Alliance of Ireland (NAI) and the Neurology Clinical Programme. (more…)
The 26th International Symposium on ALS/MND will take place in Orlando, USA from 11 – 13 December 2015.
The International Symposium is the largest medical and scientific conference on MND/ALS. It is the premier event in the MND research calendar, attracting over 800 delegates, representing the energy and dynamism of the global MND research community.
To find out more about this event and to register to avail of the early bird option, please visit the MND Association
The IMNDA is very disappointed not to receive funding this year from Pobal for the Association Visitor Programme.
We were relying on this funding to continue this programme as it performs a vital role in supporting those affected with Motor Neurone Disease across Ireland. It is very comforting to have someone available locally that can give you advice and support. This can help to reduce the sense of isolation that some people affected by this disease can experience. We will now struggle to continue to fund this vital programme. I know that other charities are facing a similar fate. As it stands we only receive 14% government funding and this is continually being cut, people cannot continue to suffer”.
More information on this story and other organisations affected by this decision http://www.disability-federation.ie/index.php?uniqueID=10900
Have your say on how medical need should be taken into account in the provision of medical cards
The Government has decided to develop a policy framework for medical card eligibility to take account of medical conditions. The HSE has established an Expert Panel to examine the range of medical conditions that should be considered for inclusion in the policy framework.