Education and Support Archives - IMNDA | Irish Motor Neurone Disease Association

ALS/MND Patient Fellows Program

ALS/MND Patient Fellows Program
Bringing People with ALS/MND and Caregivers Into The Scientific Discourse
Have you ever wondered what the Patient Fellows Program for the International Symposium is all about? Are you interested in connecting with 1000+ researchers?
Please listen to the video below from past fellows, Philip Green and Gwen Peterson, to hear what the Patient Fellows Program is all about!
Once you have had a chance to watch the video, please encourage people living with ALS/MND to apply to be a Patient Fellow this year. This is a global program and we would encourage applicants from anywhere, however, the program is only offered in English.
To apply for this programme, visit here https://www.alspatientfellows.org/
Applications for 2021 are open as of 5th July
Deadline for applications is the end of the day on Friday, 20th August.

Coping with Stress as a Person with MND

“To say my world was turned upside-down that day in clinic is an understatement.  I was expecting bad news, but the diagnosis came as a terrible shock.  Some days, even now, I stop and ask myself has this actually happened,” ~ Person with MND

A diagnosis of motor neurone disease is life changing.  For many people, it comes as a devastating blow, both to the person diagnosed and their loved ones.  It’s normal to feel very distressed around the time of diagnosis.  It brings shock and often profound sadness.  For many, it comes at a time in life when they were preparing to enjoy retirement.  For others, it arrives when they are in the middle of their working life and raising young families.  Grief at the loss of the future you thought was ahead can hit like a tidal wave. (more…)

Living Well – HSE Support for Caregivers

Are you a caregiver?

Building Better Caregivers: classes are highly participatory, where mutual support and success build the participants’ confidence in their ability to manage their caregiving tasks and maintain a fulfilling life (more…)

New virtual supports available for MND during Covid

Back in March 2020, the Health Research Board (HRB) in cooperation with the Irish Research Council (IRC) launched the COVID-19 Rapid Response Call to fund research to provide evidence for the national and global efforts to deal with the virus outbreak. The funding process was a highly competitive one and several awards were received by Trinity investigators. (more…)

MND & the Covid-19 Vaccine

VACCINATIONS

Ireland is currently rolling out a Covid-19 vaccination programme. Presently there are three licensed vaccines being used; the Pfizer-BioNTech, Moderna and AstraZeneca vaccines.

Everyone with a chronic neurological condition should continue to follow government advice to reduce the risk of catching and transmitting COVID-19 even if they have received a vaccine for COVID-19. (more…)

The Story of the iPad and Predictable App

A Small Device that brings Big Benefits

  • An iPad and Predictable app transform lives
  • Device is instrumental in maintaining social circle and network
Solving problems

The IMNDA helps people who have been diagnosed with MND/ALS in a variety of ways. It supplies mobility aids to those who cannot walk unaided, communication devices to those who cannot talk, and care packages to people who need assistance with personal or home care. (more…)

A Nurse’s Perspective

The past year has seen a lot of changes in our lives, but one service has remained steady and constant during all the chaos. Our Nursing Service.

Here, one of our fab four, Eithne Cawley speaks about nursing during the pandemic and the importance of our Sponsored Silence Campaign #Voice4MND.

She explores the symptoms and emotions associated with speech loss and how our services can help. (more…)

Five Ways for Carers to Practice Mindfulness

“Taking care of yourself doesn’t mean me first, it means me too,”   L.R. Knost

Staying well while supporting a loved one with MND takes real effort.  Oftentimes caregivers’ own needs get put on hold because of the demands of the condition.  The pandemic has also deprived families of key supports and social contact.  As the COVID-19 crisis rumbles on, self-care has never been more important for caregivers. (more…)

Research Mealtime Study

Are you the family carer of a person who has been diagnosed with MND?

Do you provide any assistance to a loved one to help them eat and drink?

Are you interested in taking part in a study exploring your experience of mealtime with your

family member who has MND?

(more…)

AGM and Annual Conference 2019

The IMNDA is hosting it’s AGM and Annual Conference 2019 on Friday 4th October at the Hodson Bay Hotel, Athlone.

The Annual Conference  will feature a variety of speakers including a member of Professor Orla Hardiman’s MND Research team. Lunch will end the day’s formal business.

If you are interested in attending or would like to find out more please email services@imnda.ie or call Tracy on 01 873 0422.

Recharge Grant 2019

Do you know about our Recharge Grant? This amazing grant offers people with MND and their loves ones the opportunity to have a break from their usual routine and enjoy some quality time together. (more…)

New MND Information Booklet

We have recently put together a new information booklet called ‘An Introduction to Motor Neurone Disease (MND)’. This new booklet presents information on MND in simple terms and in a way that is easy to break down and understand. (more…)