Are you a caregiver?
Building Better Caregivers is for those caring for a child, teenager, young adult, a parent, family member, a loved one or friend. Classes are highly participatory, where mutual support and success build the participants’ confidence in their ability to manage their caregiving tasks and maintain a fulfilling life. (more…)
On Wednesday 5th of April we were treated to an excellent interactive talk with Dr. Roisin Mc Mackin on some of the ongoing research of MND/ALS in Dublin on how MND affects activity in the brain. Roisin discussed how the research is done, who can take part, why it may improve medical care and testing of possible treatments and gave a quick overview of some of the most recent results. (more…)
What matters to you?
IMNDA along with MND Scotland have put together a national survey to find out what you feel is working, what isn’t, and how it can work better. Through this national survey, your responses will directly shape what we do, from research, to services, to campaigning over the coming years. We really appreciate your help with this.
#ClimbwithCharlie took place on the 2nd April in 2022. Over €3 million was raised for Irish Motor Neurone Disease Association & Pieta House. (more…)
IMNDA supported the Living with Neurological Conditions campaign that launched on 16th March within the Irish Independent and online at https://www.healthnews.ie/campaign/neurology/ (more…)
Patients Deserve Better Campaign is a nationwide campaign led by the Neurological Alliance of Ireland (NAI) in collaboration with 22 neurological charities. The campaign is calling for a community neuro-rehabilitation team to be established in each of the 9 community health organisations around the country. (more…)
We are so thankful to Charlie and Claire Bird who dedicated all their time and energy to making their “Climb with Charlie” initiative so successful. It is their wish that monies raised for IMNDA go towards projects that make a real difference to those families affected by motor neurone disease in Ireland.
We have now established the “Charlie Bird Development Fund” and our first project is to provide a new role of Clinical Nurse Specialist for the midlands area. (more…)
The Irish Hospice Foundation is hosting a free online Bereavement Information evening at 7pm on December 8th. (more…)
Our congratulations to Professor Hardiman on receiving this very presitigious award. (more…)
“The ADORE study, a large European clinical trial, has recently started in Ireland. The ADORE study is
evaluating a potential new treatment for people living with #ALS. (more…)
We would like to thank everyone for attending our AGM & Annual Conference event on Friday 7th October in Charleville Park Hotel. The event was a great success with attendance in excess of 250 people, both online and in person. (more…)
We wanted to share with you some very important webinar dates for your diary. Accora are once again hosting an in-depth MND webinar with the esteemed Jenny Rolfe, MSc OT. A session will also be hosted by our very own Naomi Fitzgibbon, Director of Nursing and Services.