We have recently put together a new information booklet called ‘An Introduction to Motor Neurone Disease (MND)’. This new booklet presents information on MND in simple terms and in a way that is easy to break down and understand.
Education and Support
Please see the below document on how the Budget 2018 will affect family carers.
Are you a Family carer? Family carers need support and now there is a new online support group that you might find helpful.
A Study Day for Healthcare Professionals Managing MND: The Impact of Cognitive and Behavioural Change The Motor Neurone Disease Research Group at Beaumont Hospital and Trinity College is developing an educational programme for Healthcare professionals treating patients and families of people with MND.
Behavioural Changes in MND: What Families Need to Know The Irish Motor Neurone Disease Research Group at Beaumont Hospital and Trinity College is developing an educational programme for families of people with MND. The purpose is to help those affected by MND to recognize the thinking, behaviour and personality changes that can occur as part… Read More »
27th Annual International Symposium for ALS/MND is coming to Dublin! The International Alliance holds the Annual Alliance Meeting to provide a forum for member associations to meet and share advances in supporting people living with ALS/MND.
Findings from the first published audit of neurology services in Ireland, launched on Tuesday 15th February 2016, point to widespread deficits in neurology services across the country. The audit, based on reports from each of the eleven neurology centres nationwide was carried out in 2015 as part of a joint collaboration between the Neurological Alliance of… Read More »
The 26th International Symposium on ALS/MND will take place in Orlando, USA from 11 – 13 December 2015. The International Symposium is the largest medical and scientific conference on MND/ALS. It is the premier event in the MND research calendar, attracting over 800 delegates, representing the energy and dynamism of the global MND research community. To… Read More »
The IMNDA is very disappointed not to receive funding this year from Pobal for the Association Visitor Programme. We were relying on this funding to continue this programme as it performs a vital role in supporting those affected with Motor Neurone Disease across Ireland. It is very comforting to have someone available locally that can give you advice and support…. Read More »
Have your say on how medical need should be taken into account in the provision of medical cards The Government has decided to develop a policy framework for medical card eligibility to take account of medical conditions. The HSE has established an Expert Panel to examine the range of medical conditions that should be considered… Read More »