Following the death of Father Tony Coote, Chief Executive of the Irish Motor Neurone Disease Roisin Duffy said, “From the moment he was diagnosed, Father Tony Coote not only bore his illness with tremendous dignity, he also became a tireless advocate for everyone living with MND. His decision to travel 550 kilometres from Donegal to Cork last year was testament to his resilience and determination. The €600,000 raised is already making a real impact on Ireland’s MND community. On September 14th, that community will again “Walk While You Can” in Father Tony’s memory, as he would have wanted. To Father Tony’s family and wide circle of friends, we at the IMNDA offer our deepest sympathies at this difficult time. We pledge to honour his memory, and continue to support his vision for a world free of MND.”
Click here to donate in Fr. Tony’s memory.
Roisin Duffy and Fr. Tony Coote
Shane Maguire is following in Fr Tony’s footsteps and taking on a massive challenge to help raise awareness and funds for MND. Shane is currently cycling ACROSS AMERICA! This is over 5000km and here is why:
Cycling across America was a challenge that I always wanted to take on some day. I’ve always been drawn to the big sky landscape, and to the contrasting terrain of the dry, mountainous west to the more fertile, farmland of the Mid-West and East.
Back in 2012, I remember watching Colm Murray’s documentary MND, The Inside Track…..and like so many people across the country I remember being in complete awe of Colm’s determination, courage and dignity in the face of unimaginable inner turmoil and suffering as he confronted the realities of living with Motor Neurone Disease.
Fr. Tony Coote’s Walk While You Can campaign last year really has helped place MND back into the public consciousness and it just highlighted how grossly underfunded Motor Neurone Disease is in this country and the financial burden it places on families. The IMNDA rely on public donations for over 83% of their funding and we seem to be lagging behind other countries of similar size such as Scotland who currently have 16 full time MND nurses compared to four in Ireland.
The extraordinary example of people like Com Murray, Fr. Tony and others succeeded to stir something in me to get outside my comfort zone and do what I can while I can.
To support Shane and his incredible challenge please see his idonate page: https://www.idonate.ie/fundraiser/11378133_cycle-across-america-2019-for-imnda.html
The Neurological Alliance of Ireland and the European Federation of Neurological Associations are coming together on World Brain Day, Monday July 22nd to focus on advocacy in Ireland and Europe on behalf of people with neurological conditions.
We have fantastic news! We are delighted to reveal our new Recharge Grant. This amazing grant offers people with MND and their loves ones the opportunity to have a break from their usual routine and enjoy some quality time together. (more…)
On July 13th and 14th, Mondello Park will hold a “Fiestaval” Two Day race meeting. The event will raise funds for the Irish Motor Neurone Disease Association (IMNDA).
Over 400 dancers to take part in 12-hour Riverdanceathon
in aid of Irish Motor Neurone Disease Association
Thursday 20 June
from 10am until 10pm
outside the Gaiety Theatre
Now in its 2nd year the Cycle and Walk for John is in memory of John and to raise funds for IMNDA. (more…)
A relay cycle from Malin to Mizen Head is taking place on Saturday 22nd of June to raise funds for the IMNDA. (more…)
Fr. Tony Coote’s eagerly anticipated new book ‘Live While You Can’, is going to be launched on Wednesday 1st May at 6.30pm in the Church of St Therese, Mount Merrion, Co Dublin. (more…)
Colleagues of John Farrell are helping raise vital funds and awareness for the IMNDA witha fun packed day at the Carlow Shopping Centre this Easter Saturday! (more…)
We are delighted to announce that thanks to the success of our Drink Tea for MND campaign, we are unveiling a fantastic new program aimed at our primary family caregivers available for 2019. (more…)
There is a fundraising race night taking place in the Merry Monk in Ballina on Sat 13th at 9.30pm sharp. (more…)
The Hatter’s Castle Art Class is holding a Studio Exhibition in support of the IMNDA. Opening night of this exhibition will take place on Friday 5th of April at 6pm. (more…)