News Archives - IMNDA | Irish Motor Neurone Disease Association

RIP Fr. Tony Coote

Following the death of Father Tony Coote, Chief Executive of the Irish Motor Neurone Disease Roisin Duffy said, “From the moment he was diagnosed, Father Tony Coote not only bore his illness with tremendous dignity, he also became a tireless advocate for everyone living with MND. His decision to travel 550 kilometres from Donegal to Cork last year was testament to his resilience and determination. The €600,000 raised is already making a real impact on Ireland’s MND community. On September 14th, that community will again “Walk While You Can” in Father Tony’s memory, as he would have wanted. To Father Tony’s family and wide circle of friends, we at the IMNDA offer our deepest sympathies at this difficult time. We pledge to honour his memory, and continue to support his vision for a world free of MND.”

Click here to donate in Fr. Tony’s memory.

Roisin Duffy and Fr. Tony Coote

Cycle Across America for WWYC

Shane Maguire is following in Fr Tony’s footsteps and taking on a massive challenge to help raise awareness and funds for MND. Shane is currently cycling ACROSS AMERICA! This is over 5000km and here is why:

Cycling across America was a challenge that I always wanted to take on some day. I’ve always been drawn to the big sky landscape, and to the contrasting terrain of the dry, mountainous west to the more fertile, farmland of the Mid-West and East.
Back in 2012, I remember watching Colm Murray’s documentary MND, The Inside Track…..and like so many people across the country I remember being in complete awe of Colm’s determination, courage and dignity in the face of unimaginable inner turmoil and suffering as he confronted the realities of living with Motor Neurone Disease.

Fr. Tony Coote’s Walk While You Can campaign last year really has helped place MND back into the public consciousness and it just highlighted how grossly underfunded Motor Neurone Disease is in this country and the financial burden it places on families. The IMNDA rely on public donations for over 83% of their funding and we seem to be lagging behind other countries of similar size such as Scotland who currently have 16 full time MND nurses compared to four in Ireland.

The extraordinary example of people like Com Murray, Fr. Tony and others succeeded to stir something in me to get outside my comfort zone and do what I can while I can.

To support Shane and his incredible challenge please see his idonate page:

World Brain Day 2019

The Neurological Alliance of Ireland and the European Federation of Neurological Associations are coming together on World Brain Day, Monday July 22nd to focus on advocacy in Ireland and Europe on behalf of people with neurological conditions.


Recharge Grant 2019

We have fantastic news! We are delighted to reveal our new Recharge Grant. This amazing grant offers people with MND and their loves ones the opportunity to have a break from their usual routine and enjoy some quality time together. (more…)

Mondello Park “Fiestaval”

On July 13th and 14th, Mondello Park will hold a “Fiestaval” Two Day race meeting. The event will raise funds for the Irish Motor Neurone Disease Association (IMNDA).


Riverdance-athon 2019

Over 400 dancers to take part in 12-hour Riverdanceathon 

in aid of Irish Motor Neurone Disease Association

Thursday 20 June

from 10am until 10pm

outside the Gaiety Theatre


Union to Union Charity Walk

When Fr Tony Coote was diagnosed with MND, he immediately committed himself to raising awareness and funds by walking the length of Ireland. Please join us on June 23rd at 3pm as we walk from Union Cafe Mount Merrion to Union Cafe Beacon and back in honour of Fr Tony and in support of the IMNDA.


Fr Tony Coote’s Book Launch

Fr. Tony Coote’s eagerly anticipated new book ‘Live While You Can’, is going to be launched on Wednesday 1st May at 6.30pm in the Church of St Therese, Mount Merrion, Co Dublin. (more…)

Family Caregiver Support Program 2019

We are delighted to announce that thanks to the success of our Drink Tea for MND campaign, we are unveiling a fantastic new program aimed at our primary family caregivers available for 2019. (more…)