“To say my world was turned upside-down that day in clinic is an understatement.  I was expecting bad news, but the diagnosis came as a terrible shock.  Some days, even now, I stop and ask myself has this actually happened,” ~ Person with MND

A diagnosis of motor neurone disease is life changing.  For many people, it comes as a devastating blow, both to the person diagnosed and their loved ones.  It’s normal to feel very distressed around the time of diagnosis.  It brings shock and often profound sadness.  For many, it comes at a time in life when they were preparing to enjoy retirement.  For others, it arrives when they are in the middle of their working life and raising young families.  Grief at the loss of the future you thought was ahead can hit like a tidal wave. (more…)

Are you a caregiver?

Building Better Caregivers: classes are highly participatory, where mutual support and success build the participants’ confidence in their ability to manage their caregiving tasks and maintain a fulfilling life (more…)

A Small Device that brings Big Benefits

• An iPad and Predictable app transform lives
• Device is instrumental in maintaining social circle and network

Solving problems

The IMNDA helps people who have been diagnosed with MND/ALS in a variety of ways. It supplies mobility aids to those who cannot walk unaided, communication devices to those who cannot talk, and care packages to people who need assistance with personal or home care. (more…)

The past year has seen a lot of changes in our lives, but one service has remained steady and constant during all the chaos. Our Nursing Service.

Here, one of our fab four, Eithne Cawley speaks about nursing during the pandemic and the importance of our Sponsored Silence Campaign #Voice4MND.

She explores the symptoms and emotions associated with speech loss and how our services can help. (more…)

“Taking care of yourself doesn’t mean me first, it means me too,”   L.R. Knost

Staying well while supporting a loved one with MND takes real effort.  Oftentimes caregivers’ own needs get put on hold because of the demands of the condition.  The pandemic has also deprived families of key supports and social contact.  As the COVID-19 crisis rumbles on, self-care has never been more important for caregivers. (more…)