News Archives - IMNDA | Irish Motor Neurone Disease Association

Chief Executive Officer Job Vacancy

The IMNDA is looking to fill the role of Chief Executive Officer

About the Organisation

The Irish Motor Neurone Disease Association (IMNDA) supports people living with Motor Neurone Disease (MND), their families and carers by providing services and supports throughout Ireland including home visits by specialist MND nurses and the supply of specialised equipment on loan. The IMNDA also represents and advocates for people living with MND, their families and carers at a national level.

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Coping with Stress as a Person with MND

“To say my world was turned upside-down that day in clinic is an understatement.  I was expecting bad news, but the diagnosis came as a terrible shock.  Some days, even now, I stop and ask myself has this actually happened,” ~ Person with MND

A diagnosis of motor neurone disease is life changing.  For many people, it comes as a devastating blow, both to the person diagnosed and their loved ones.  It’s normal to feel very distressed around the time of diagnosis.  It brings shock and often profound sadness.  For many, it comes at a time in life when they were preparing to enjoy retirement.  For others, it arrives when they are in the middle of their working life and raising young families.  Grief at the loss of the future you thought was ahead can hit like a tidal wave. (more…)

Living Well – HSE Support for Caregivers

Are you a caregiver?

Building Better Caregivers: classes are highly participatory, where mutual support and success build the participants’ confidence in their ability to manage their caregiving tasks and maintain a fulfilling life (more…)

Remembering Mums this Mother’s Day

For most of us, Mum’s are like buttons. They hold everything together. They are constant in their care and support for us. Guiding us through life’s struggles and triumphs. Their love is an everlasting embrace that never stops or falters. Even when they are no longer with us.

In the lead up to Mother’s Day, three of our fabulous supporters share with us stories and precious memories of their Mums. (more…)

MND & the Covid-19 Vaccine

VACCINATIONS

Ireland is currently rolling out a Covid-19 vaccination programme. Presently there are three licensed vaccines being used; the Pfizer-BioNTech, Moderna and AstraZeneca vaccines.

Everyone with a chronic neurological condition should continue to follow government advice to reduce the risk of catching and transmitting COVID-19 even if they have received a vaccine for COVID-19. (more…)

The Story of the iPad and Predictable App

A Small Device that brings Big Benefits

  • An iPad and Predictable app transform lives
  • Device is instrumental in maintaining social circle and network
Solving problems

The IMNDA helps people who have been diagnosed with MND/ALS in a variety of ways. It supplies mobility aids to those who cannot walk unaided, communication devices to those who cannot talk, and care packages to people who need assistance with personal or home care. (more…)

A Nurse’s Perspective

The past year has seen a lot of changes in our lives, but one service has remained steady and constant during all the chaos. Our Nursing Service.

Here, one of our fab four, Eithne Cawley speaks about nursing during the pandemic and the importance of our Sponsored Silence Campaign #Voice4MND.

She explores the symptoms and emotions associated with speech loss and how our services can help. (more…)

New Year – New Research Updates!

As we kick off 2021, news arrives to us from across the pond of research developments. Recently, the University of Edinburgh issued a press release saying that a cohort of their scientists had unveiled interesting lab results that in the future could lead to potential treatments. (more…)

Five Ways for Carers to Practice Mindfulness

“Taking care of yourself doesn’t mean me first, it means me too,”   L.R. Knost

Staying well while supporting a loved one with MND takes real effort.  Oftentimes caregivers’ own needs get put on hold because of the demands of the condition.  The pandemic has also deprived families of key supports and social contact.  As the COVID-19 crisis rumbles on, self-care has never been more important for caregivers. (more…)

IMNDA Christmas Hours

The Irish Motor Neurone Disease Association will close up on Wednesday 23rd December at 1pm. 

We will be back in action on Monday 4th January at 9am.

We would like to wish you a very merry, healthy and safe Christmas and thank you for your unwavering commitment and support to the Association during a year like no other.

Here’s to 2021 when we hope we will meet again in person!

 

A Christmas Note from our CEO

What a year 2020 has been. Little did we know at the start of the year when the word Coronavirus first entered our lives, that we would be still facing so much uncertainty as we approached 2021. (more…)

Christmas Message from Michael Clancy

Michael Clancy is one of our much loved IMNDA Ambassadors. Micheal is a Clare man living in Limerick. He has a little message to share with the MND Community over this festive period. 

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A Voice in the Wilderness by Andy McGovern

The year 2020 will go down in history.  The year when the whole world slowed down. A time when people took a step back, relaxed and stayed at home, spent more time with family.  People gave thanks and appreciated all that they had. Please God if I’m spared, this will be my 87th Christmas on this earth.  These old eyes have seen it all, the good and the bad. I’m thankful that life has bestowed upon me a calm perspective. (more…)