Press Releases Archives - IMNDA | Irish Motor Neurone Disease Association

A Christmas Note from our CEO

What a year 2020 has been. Little did we know at the start of the year when the word Coronavirus first entered our lives, that we would be still facing so much uncertainty as we approached 2021. (more…)

A Long Shot


After what feels like forever in lockdown, I’m sure like us you are thrilled that golf is back in play – albeit with a few extra rules and safety precautions as a result of Covid-19. It’s been a long and scary road, especially for vulnerable people living with Motor Neurone Disease, but seeing golf courses reopen all around the country has definitely lifted everyone’s spirits. It’s also given us a glimmer of hope that we are on par (no pun intended) to beat the virus and restore some normality at last.

And what could be better than a round of golf on a sunny day? Simple answer – three rounds of golf!

That’s what A Long Shot is all about.

It’s a golf marathon of types, designed to test your endurance and stamina as you complete three rounds of golf back to back in one day. That’s 54 holes of golf – which is no mean feat.

Do you think you have what it takes? You do! Well that’s just tee-rific! CLICK HERE and we’ll get you all signed up.

Drink Tea for MND!


Drink Virtual Tea for MND

There is no doubt that the global pandemic has changed our everyday lives. This year’s Drink Tea for MND is a very different but very exciting one. Although we are under the cloud of Covid- 19, we must adapt to these uncertain times. A recent survey by the Charities Regulator, showed that more than half of the 2,223 charities that responded say their finances were uncertain or in difficulty as a result of Covid-19. The IMNDA is no different
with an expected 60% drop in fundraised income by year end.

As the only organisation in Ireland providing care and support to families affected by MND this will have a devastating impact. Today, there are more than 400 people living with this complex and cruel disease and they need our support and your support like never before.

June is such an important month for our MND community. It is a month of global awareness, with June 21 st being Global MND Awareness Day.

With so many of us working and staying at home, our kettles have been in full demand. One thing certainly hasn’t changed during this time and that’s enjoying a well-deserved cup of tea. Despite social distancing, we can still be together.

Whether it be a cup of tea during your zoom chat, a hot cuppa in the back garden with friends (all while social distancing of course) or a keep cup in the park, we would love you to join us for Drink Virtual Tea for MND.

To help support the MND community and spread MND Awareness this month we want you to support us on June 21 st – or a date close to it – by hosting a Drink Virtual Tea for MND event. It can be as elaborate or as simple as asking friends, family or work colleagues to support you by ‘purchasing’ tea, coffee or some delicious goodies from your Virtual Café Menu!

So, why not pull up a seat at our virtual table? We would love you to join in.

Drink Virtual Tea for MND

June 21st is Motor Neurone Disease Awareness Day.  Every year all over Ireland homes and businesses put the kettle on and Drink Tea for MND to raise much needed funds for families living with Motor Neurone Disease. This year our tea parties will be a little different but the impact of your support won’t. This June we are asking you to Drink Virtual Tea for MND. Click Here to find out how!


Wedding Favours

Is your special day approaching? Show your support for the IMNDA on your wedding day and purchase our beautiful wedding favour cards. The cards are business card sized and folded over. They look lovely at each place setting. Available all year round!

The message inside the card reads:

Thank you for being part of our special day.
In honour and appreciation of our guests a contribution has been made to the Irish Motor Neurone Disease Association

Buy yours today for just €2 a card and we will get them in the post straight away!

Wedding card

Louisburgh Voices & Cór Mhaigh Eo Concert

Gabriel Fauré Requiem

We are delighted to have been chosen as one of the beneficiaries of a fundraising concert taking place in Ballintubber Abbey, Co. Mayo on Friday 29th November 2019 at 7:30pm, with two local choirs – Louisburgh Voices and Cór Mhaigh Eo.

Tickets are €20 available from The Clew Bay Hotel, Westport – Tel. 098 28088 / Durkan’s Gala, Louisburgh – Tel. 098 66394 / Visit Castlebar – Tel. 094 9024845.

Please support what promises to be a fantastic evening in aid of the IMNDA and Ballintubber Abbey Trust.

November is My Legacy Month

November is a good time to make your will and consider leaving a legacy gift to a cause you care about.

My Legacy was established in 2006 by a small group of Irish charities who knew at first hand the great impact a legacy gift can have on the work of a charity. They also realised that, unlike other countries, many Irish people do not make a will despite how important a life document it is. Since then, My Legacy has grown to an umbrella group of 65 Irish charities who work together to promote the great importance of making a will and to ask people to consider leaving a legacy gift to a favourite charity, once family and friends have been taken care of and all other important personal decisions have been made.

November welcomes the annual Autumn awareness campaign, My Legacy Month, a good time to take that first step in writing your will by making an appointment with a solicitor. My Legacy is grateful for the support of hundreds of solicitor firms all around the country who can offer expert guidance and advice about making or amending a will at any time of the year.

It is usually a much more straightforward and cost effective process than you might think; it will only take about an hour or so of your time. Your solicitor will discuss what is necessary for drawing up this important personal document when you make your appointment.

Once family and friends have been looked after and all other important personal decisions have been made, deciding to leave a legacy gift to a charity like the IMNDA is a wonderful way to support a favourite cause in the future. Large or small, every legacy is a generous gift of hope and trust for the future.

The IMNDA has gratefully received over half a million euros from gifts in people’s Will’s; an incredible amount of money which has made a huge impact to families dealing with MND.

Thank you for considering leaving a gift to the IMNDA.

Annual Memorial Service 2019

On Saturday 23rd November we would like to invite everybody whose lives have been touched by Motor Neurone Disease to come together with family and friends and join us in remembering those we have sadly lost to MND. (more…)

Irish Life raise €180,000 for the IMNDA

12th December 2018 – Irish Life has announced that its employees have raised a fantastic sum of €360,000 for two Irish charities, the largest amount ever donated in a single year by the company. (more…)

IMNDA to hire 4th nurse from funds raised by Fr Tony Coote

Campaign contributes €275,000 to charity helping people living with MND

The Irish Motor Neurone Disease Association (IMNDA) has announced plans to hire a fourth nurse to help people living with motor neurone disease in Ireland using funds raised from Fr. Tony Coote’s inspirational Walk While You Can campaign. (more…)

The IMNDA is now Triple Locked!

Triple Locked Member of Charities Institute Ireland 2017

The IMNDA is delighted to announce that we have been awarded the Triple Lock Status for 2017. This has been bestowed on us as we demonstrated that our charity always upheld the highest standards in transparent reporting, good fundraising and governance. (more…)