This year the IMNDA and 60 Irish charities are asking the public to consider leaving a legacy gift in their wills.
The Irish Motor Neurone Disease Association (IMNDA) is truly saddened to hear of the passing of Jan Battles.
Triple Locked Member of Charities Institute Ireland 2017 The IMNDA is delighted to announce that we have been awarded the Triple Lock Status for 2017. This has been bestowed on us as we demonstrated that our charity always upheld the highest standards in transparent reporting, good fundraising and governance.
The Irish Motor Neurone Disease Association (IMNDA) has reacted with great sadness to the death of our friend and patron, Jimmy Magee. Jimmy tirelessly supported the charity for well over a decade, following the untimely death of his son Paul from motor neurone disease.
Ministers Harris and Daly announce opening of a Public Consultation on Home Care Services Minister for Health, Simon Harris, TD, and Minister of State for Mental Health and Older People Jim Daly, TD, today announced the opening of a public consultation on home care services. The consultation is being carried out in order to help… Read More »
“I know I sound a bit drunk, but tea is the only thing I’ve been drinking” Rugby mad Michael Clancy to feature in awareness drive for IMNDA Fundraising to help 360 Irish people living with incurable Motor Neurone Disease
Ice Bucket Challenge Funds MND Breakthrough Money raised from the global fundraising phenomenon “The Ice Bucket Challenge” has helped to make a significant breakthrough in identifying a key gene linked to Motor Neurone Disease.
IMNDA Strongly Condemns Actions of Console Founder The IMNDA, its staff and board members would just like to reassure supporters and donors surrounding the recent stories that are surfacing regarding Console. The IMNDA strongly condemns the actions of its former CEO and board of directors. The IMNDA is shocked and appalled to hear how money… Read More »
27th Annual International Symposium for ALS/MND is coming to Dublin! The International Alliance holds the Annual Alliance Meeting to provide a forum for member associations to meet and share advances in supporting people living with ALS/MND.
Findings from the first published audit of neurology services in Ireland, launched on Tuesday 15th February 2016, point to widespread deficits in neurology services across the country. The audit, based on reports from each of the eleven neurology centres nationwide was carried out in 2015 as part of a joint collaboration between the Neurological Alliance of… Read More »
Press Release 1st February 2016 Sometimes Silence Speaks Volumes Imagine an hour…a day….a week without speech. Imagine not being able to say ‘I love you’ this Valentine’s Day. Unfortunately that is the fate met by most people living with Motor Neurone Disease (MND).
Join Kildare Man in His Fight to D-Feet Motor Neurone Disease Former soldier, Patrick Butler, from Newbridge in Co. Kildare was diagnosed with Motor Neurone Disease (MND) in 2013. He is 55 years old. Patrick served 37 proud years in the Defence Forces. From once being a fit active man, Patrick now needs the help… Read More »
“Sometimes I think it is unfair that as well as dying young you have to waste away slowly,” Loretto Dempsey MND National Awareness Campaign Loretto Dempsey has Motor Neurone Disease (MND). In April she recorded Radio Adverts as part of a National Awareness initiative, kindly supported by SuperValu and Dublin Bus. The campaign aims to… Read More »
MND Global Awareness Day 21st June We have just launched our National Awareness Campaign in the run up to ‘MND Global Awareness Day’ 21st June. One of our clients Loretto Dempsey who shares her story of MND, will feature on an infomercial on National Radio which will be aired from the 8th – 21st June along with a poster campaign on Dublin Bus from… Read More »
‘An intriguing environmental twist to dystopia’ Roland Evans Releases The Marshlander Chronicles for MND Roland Evans had to retire from his post as a National School Teacher after he was diagnosed with Motor Neurone Disease (MND) 5 years ago. However, Roland did not let this stop him from achieving his dream of becoming an author… Read More »