Press Releases Archives - IMNDA | Irish Motor Neurone Disease Association

Walk While You Can 2021

Every day the most remarkable people face the toughest of battles. We will never forget what Fr Tony Coote did for Motor Neurone Disease. In July 2018, five months after his own diagnosis of MND and in a wheelchair, he completed an extraordinary walk from Donegal to Cork, a distance of over 550 kilometres

It took four weeks on the road travelling from town to town in all weather conditions but in the end an incredible €700,000 was raised for the IMNDA and MND Research. From these miraculous funds, we were able to employ a fourth nurse. That’s the power of a walk and one man’s incredible strength and determination!

Because of Tony we hired a 4th nurse, because of you we can sustain this vital service.

Your community walks will keep our nurses in the communities where they are needed most.

This September 11th, it’s up to all of us to ensure that Walk While You Can continues to raise urgently needed funds for people living with MND.

So let’s walk while we can, where we can and continue what Tony started!

Together we can make a difference and keep Fr Tony’s legacy going. He himself found hope in times of adversity so we must do the same.

Register to Walk by Clicking Here.


Drink Tea for MND 2021!

This June, get ready for a cup of something really special!

June 21st is Global Motor Neurone Disease Awareness Day. Every year all over Ireland homes and businesses of all sizes put the kettle on and to do something really special to raise much needed funds for families living with Motor Neurone Disease.

In 2020, for the first time, your tea parties took place online… and it was our most successful Drink Tea for MND ever raising over €250,000 for families living with Motor Neurone Disease!!!

Now that’s what we call a strong cup of tea!

This year we want you to help us make an even bigger difference for families living with MND. Please join us on put the kettle on! 

Click Here to Register!

We need you!!

We couldn’t provide our vital services without your support. When you sign up and get involved with one of our annual campaigns you are making a real difference to people with MND.

Over 80% of our income comes from fundraising and donations and demand for our services are at an all-time high. Please take on a challenge and help us to continue providing care and support to those who need it most.

So what can you do? To find out more about the IMNDA’s annual events and campaigns please visit:

New virtual supports available for MND during Covid

Back in March 2020, the Health Research Board (HRB) in cooperation with the Irish Research Council (IRC) launched the COVID-19 Rapid Response Call to fund research to provide evidence for the national and global efforts to deal with the virus outbreak. The funding process was a highly competitive one and several awards were received by Trinity investigators. (more…)

Generator’s Skyview Tower Halloween Abseil!

NEVER BEEN DONE BEFORE CHALLENGE…Climb 244 steps to the top of the tower and abseil 190 feet down into Smithfield square on Halloween weekend, this is NOT for the fainthearted!


On Saturday 30th October, the IMNDA will take over the Generator’s Skyview Tower in Smithfield for a blood curdlingly spooky event! We are looking for brave and capable participants who want to do something a little bit different whilst raising money for charity.

We are extremely excited to be part of this brand new event this autumn. Twice the height of Croke Park’s Hogan Stand, we dare you to take this on to raise funds for people with MND.

This is the first ever abseiling event down this iconic tower so this is truly a unique opportunity! This huge red brick tower dominates the Smithfield skyline. Building of the structure was completed in 1895.

Participants must be over 16 and no abseiling experience is required. This event is ran in conjunction with  who will provide full training on the day.

Go back in time as you climb the 244 winding steps – please be sure you are fit and able for the 16 flights of steps before you sign up. There is no other way up but it’s well worth it for the breath-taking unobstructed views of Dublin stretching as far as Howth and Killiney.

UK Bungee Club will get you harnessed up and ready so you can abseil down the tower from the viewing platform with your friends and family cheering you on from the bottom – the ultimate buzz not to be missed!!!

To register for this amazing experience and secure your place we ask for payment of €100. However, we won’t be taking any payment until we have more certainty on events and restrictions for Autumn 2021. To register your interest please email

We are setting a €300 fundraising target (which is additional to the €100 fee) per participant so please be confident you can raise this before signing up. Places are limited and we want to maximise funds from such a special event. We provide sponsorship cards and encourage fundraising online.

*Please Note* We are hopeful Covid Restrictions will be lifted for this event to take place in October 2021. Currently we are asking people to register their interest by emailing and we will add your name to the list and update you on the status of the event as the year goes on.

A Christmas Note from our CEO

What a year 2020 has been. Little did we know at the start of the year when the word Coronavirus first entered our lives, that we would be still facing so much uncertainty as we approached 2021. (more…)

A Long Shot


After what feels like forever in lockdown, I’m sure like us you are thrilled that golf is back in play – albeit with a few extra rules and safety precautions as a result of Covid-19. It’s been a long and scary road, especially for vulnerable people living with Motor Neurone Disease, but seeing golf courses reopen all around the country has definitely lifted everyone’s spirits. It’s also given us a glimmer of hope that we are on par (no pun intended) to beat the virus and restore some normality at last.

And what could be better than a round of golf on a sunny day? Simple answer – three rounds of golf!

That’s what A Long Shot is all about.

It’s a golf marathon of types, designed to test your endurance and stamina as you complete three rounds of golf back to back in one day. That’s 54 holes of golf – which is no mean feat.

Do you think you have what it takes? You do! Well that’s just tee-rific! CLICK HERE and we’ll get you all signed up.

Wedding Favours

Is your special day approaching? Show your support for the IMNDA on your wedding day and purchase our beautiful wedding favour cards. The cards are business card sized and folded over. They look lovely at each place setting. Available all year round!

The message inside the card reads:

Thank you for being part of our special day.
In honour and appreciation of our guests a contribution has been made to the Irish Motor Neurone Disease Association

Buy yours today for just €2 a card and we will get them in the post straight away!

Wedding card

Louisburgh Voices & Cór Mhaigh Eo Concert

Gabriel Fauré Requiem

We are delighted to have been chosen as one of the beneficiaries of a fundraising concert taking place in Ballintubber Abbey, Co. Mayo on Friday 29th November 2019 at 7:30pm, with two local choirs – Louisburgh Voices and Cór Mhaigh Eo.

Tickets are €20 available from The Clew Bay Hotel, Westport – Tel. 098 28088 / Durkan’s Gala, Louisburgh – Tel. 098 66394 / Visit Castlebar – Tel. 094 9024845.

Please support what promises to be a fantastic evening in aid of the IMNDA and Ballintubber Abbey Trust.

November is My Legacy Month

November is a good time to make your will and consider leaving a legacy gift to a cause you care about.

My Legacy was established in 2006 by a small group of Irish charities who knew at first hand the great impact a legacy gift can have on the work of a charity. They also realised that, unlike other countries, many Irish people do not make a will despite how important a life document it is. Since then, My Legacy has grown to an umbrella group of 65 Irish charities who work together to promote the great importance of making a will and to ask people to consider leaving a legacy gift to a favourite charity, once family and friends have been taken care of and all other important personal decisions have been made.

November welcomes the annual Autumn awareness campaign, My Legacy Month, a good time to take that first step in writing your will by making an appointment with a solicitor. My Legacy is grateful for the support of hundreds of solicitor firms all around the country who can offer expert guidance and advice about making or amending a will at any time of the year.

It is usually a much more straightforward and cost effective process than you might think; it will only take about an hour or so of your time. Your solicitor will discuss what is necessary for drawing up this important personal document when you make your appointment.

Once family and friends have been looked after and all other important personal decisions have been made, deciding to leave a legacy gift to a charity like the IMNDA is a wonderful way to support a favourite cause in the future. Large or small, every legacy is a generous gift of hope and trust for the future.

The IMNDA has gratefully received over half a million euros from gifts in people’s Will’s; an incredible amount of money which has made a huge impact to families dealing with MND.

Thank you for considering leaving a gift to the IMNDA.

Annual Memorial Service 2019

On Saturday 23rd November we would like to invite everybody whose lives have been touched by Motor Neurone Disease to come together with family and friends and join us in remembering those we have sadly lost to MND. (more…)

Irish Life raise €180,000 for the IMNDA

12th December 2018 – Irish Life has announced that its employees have raised a fantastic sum of €360,000 for two Irish charities, the largest amount ever donated in a single year by the company. (more…)

IMNDA to hire 4th nurse from funds raised by Fr Tony Coote

Campaign contributes €275,000 to charity helping people living with MND

The Irish Motor Neurone Disease Association (IMNDA) has announced plans to hire a fourth nurse to help people living with motor neurone disease in Ireland using funds raised from Fr. Tony Coote’s inspirational Walk While You Can campaign. (more…)