Press Releases

Loretto’s Story of MND

MND Global Awareness Day 21st June We have just launched our National Awareness Campaign in the run up to ‘MND Global Awareness Day’ 21st June. One of our clients Loretto Dempsey who shares her story of MND, will feature on an infomercial on National Radio which will be aired from the 8th – 21st June along with a poster campaign on Dublin Bus from… Read More »

Roland Evans Releases The Marshlander Chronicles for MND

‘An intriguing environmental twist to dystopia’ Roland Evans Releases The Marshlander Chronicles for MND Roland Evans had to retire from his post as a National School Teacher after he was diagnosed with Motor Neurone Disease (MND) 5 years ago. However, Roland did not let this stop him from achieving his dream of becoming an author… Read More »

Imagine not being able to say ‘I Love You’ this Valentine’s Day

Imagine not being able to say ‘I Love You’ this Valentine’s Day Sharon Can’t February is the month of love where couples from across the world openly celebrate their affection for each other. But imagine not being able to say ‘I Love You’ this Valentine’s Day. Most people with Motor Neurone Disease (MND) can’t.  Between… Read More »

Sometimes Silence Can Speak Volumes

Imagine not being able to say ‘I Love You’ this Valentine’s Day Emma Can’t  February is the month of love where couples from across the world openly celebrate their affection for each other. But imagine not being able to say ‘I Love You’ this Valentine’s Day. Most people with Motor Neurone Disease (MND) can’t.  Between… Read More »

Ice Bucket Challenge Update

The Irish Motor Neurone Disease Association (IMNDA) is delighted to announce that the income received so far from the Ice Bucket Challenge is over €1.6m!

IMNDA Welcomes Changes to the Medical Card

IMNDA Welcomes Changes to Medical Card The Minister of Health Leo Varadkar has announced the findings of the Expert Panel on Medical Need for the Medical Card Eligibility and has stated that the HSE will be taking actions to improve the operation of the medical card system, particularly for people with significant medical needs.

Medical Card Plan to go before Cabinet

The IMNDA welcomes the news that Medical Cards will no longer have to be renewed every six months as a new plan is to go before Cabinet. The Minister said “that it is cruel and upsetting’ to force people to renew  the card and he is looking at putting this off for three to five years or leaving it… Read More »

ALS/MND International Symposium

The programme for the 25th International Symposium on ALS/MND, which will be held in Brussels, Belgium, from 5-7 December 2014, is now available to view from the English MND Association’s website http://www.mndassociation.org/research/International+Symposium/Programme      

IMNDA Welcomes Commencement of Charity Regulatory Authority

The IMNDA has welcomed the commencement of the Charities Regulatory Authority (CRA). The CRA, Ireland’s national statutory regulatory agency for charitable organisations, is being established today (16 October) under the terms of the Charities Act 2009.

The Ice Bum Challenge

THE ICE BUckeTT CHALLENGE!!‘Calling all ice-bucket challengers, fund raisers, exhibitionists, film extras and film lovers!!’“My Name is Emily” a feature film by “MND man”, director Simon Fitzmaurice and the Irish Motor Neuron Disease association have a new challenge….

ICE Bucket Challenge Donations

The Irish Motor Neurone Disease Association (IMNDA) is completely overwhelmed by the generosity of the Irish Public.  When everything settles down, we will have a consultation process with stakeholders including the MND community to discuss the most meaningful way to use this enormous sum of money, however we are committing 25% of all funds to… Read More »

Ice Bucket challenge has reached 1 Million Euro

The IMNDA is completely overwhelmed by the generosity of the Irish Public and when the dust settles we will have a consultation process with all stakeholders including the  MND community to discuss the most meaningful way to use this enormous sum of money, however we are committing 25% of all funds to MND Research programme which… Read More »