Fundamental Rights of ALS/MND Community Survey - IMNDA

Fundamental Rights of ALS/MND Community Survey

August 27th, 2021

This is an international survey that is based on the fundamental rights of people with ALS/ MND and it is open for 3 weeks. The ALS/MND Alliance is urging the MND Community to take part in this as soon as possible.

The key objectives of the survey are:

  • Find strengths and weaknesses at a global level and be able to learn from the best and address ways to help associations and regions.
  • Provide data from each country with the opportunity to benchmark and evaluate.
  • Generate further questions and raise topics that require further attention and discussion at roundtables or the annual conference.
  • Highlight the areas the Alliance can prioritize for the creation of resources to help member associations in their advocacy.
  • Provide insight for further focused surveys on specific topics to capture more granular data.


The survey is optional and can be accessed here

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