You have received a diagnosis of MND, and need to know where to go for help. If your everyday living is affected by MND you need to have a social care assessment. For more information, contact the IMNDA offices on
+Services from the IMNDA
The IMNDA is here to help once you or someone you know has been diagnosed with MND. We are dedicated to working on behalf of and supporting people living with MND, their families and carers. Whether yourself or someone you know has been diagnosed with MND our information services can make a real difference in how you cope going forward. We work closely with local service providers to ensure you get the care and support you need.
You can register yourself or a healthcare professional or a family member can register on your behalf once your consent is given. Registration is free and details are completely confidential.
To register you can contact the IMNDA on Freefone 1800 403 403 or you can send us an email to email@example.com. We will ask for a small amount of detail for our registration form which will include: contact details, date and place of diagnosis and symptoms.
Once this is completed, one of our MND nurses will aim to contact you within a week unless you request no contact.
When you register with the IMNDA you can automatically avail of the below services free of charge
- Access to 3 MND Nurses directly employed by the association
- Access to specialised equipment on a loan basis to all clients once recommended by your OT, SLT, PHN, MND Nurse
- Access to a home care grant once recommended by the MND Nurse and where a HSE home care package is already in place
- We have a range of new initiatives launched in our Family Caregiver Support Program 2019 which includes respite, transport funding for medical appointments, funding towards holistic therapies and household duties. For more please see here
- Counselling sessions for the client and one other member of their family
- Bereavement counselling for two family members or carers of an IMNDA client
- Information Folder – Automatically posted out unless otherwise stated or available to download here
Note: All information gathered is held in a highly confidential manner
To view the IMNDA Data Protection Policy, please click here
The IMNDA Nursing Service
Eithne, Katie and Fidelma are the IMNDA nurses, who work alongside the IMNDA and consultant neurologists throughout the country. As well as attending MND clinics, the nurses travel throughout the country providing nursing support to people who have been diagnosed with MND. They provide support to their families and carers by means of home visits, a help line and on-line contact. All three nurses have a vast level of experience working within the field of neurology and all three previously worked together on a neurological ward in Beaumont hospital.
Being nurses that specialise in Motor Neurone Disease means they play active roles in both patient and health care professional education to ensure the highest level of patient care is being delivered at all times.
The nursing service is active in its total approach to care, embracing physical, emotional, social and spiritual elements. It focuses on enhancement of quality of life for the client and support for the family and includes the management of distressing symptoms and provision of support and care throughout the journey of MND.
The MND nurses are central to the patient and family. They are also vital for links out to all of the services and health care professionals. They endeavour to co-ordinate a service that provides continuity of care for a case load of patients in collaboration with local health care professionals and carers, especially those with specific palliative care needs. The role applies to acute and community care settings. The nurses act as an informed resource for health and social care professionals, involved in the care of the clients living with MND.
The nurses have designated areas to ensure a continuity of care and equitable service throughout the country.
Dublin is shared care by the three nurses.
The IMNDA provides financial assistance towards home care for people with MND. To arrange home care assistance for a person with MND, please contact us on Freefone 1800 403 403. We do not recommend any specific carers or care agencies but please find below details of agencies some of our client group have previously used. To find a carer, you can also ask your local public health nurse or health centre.
Home Instead Senior Care
Home Instead Senior Care® is a HSE approved provider of home care in all areas of the country. Our professional CAREGivers can provide 24 Hour Companionship & Personal Care Services together with Motor Neurone, Alzheimer’s & other Dementia Support as well as Palliative Care and Hospital Discharge Assistance. Neither giving nor receiving care is easy. Home Instead Senior Care® puts relationships first in order to protect the dignity of those receiving care, to support those providing care; ultimately enhancing the quality of life of both those we care for and their families.
Phone: 1890 930 847 or Visit www.homeinstead.ie to contact your local office for a free care consultation.
Private Home Care
Private Home Care provides care to anyone who needs it, at any age, in any circumstance
Phone: 01 6219101 / email: / www.privatehomecare.ie
Bluebird Care provides care at home and in the community
Caremark provides care and support for anyone who wishes to remain in their own home, regardless of their illness, disability or situation. Caremark currently offers care and support in Dublin, Cork, Galway, Kildare, Westmeath, Longford and Roscommon.Caremark Ireland,
60 Lower Baggot Street,
Phone: 01 602 4711
Irish Hospice Foundation
The Irish Hospice Foundation is a not-for-profit organisation that promotes the hospice philosophy and supports the development of hospice/palliative care. The Irish Hospice Foundation offers assistance for night nursing. The Irish Hospice Foundation provides funding for up to 14 nights’ nursing for patients, who are in the terminal phase of illness, are being cared for at home, and are receiving palliative home-care. Referrals must come from a specialist palliative care nurse or consultant – not from a G.P, public health nurse or family member. For more information on the assistance they offer click here
Contact DetailsMorrison Chambers (4th floor)
32 Nassau Street
Tel: 01 6793188
Fax: 01 6730040
Myhomecare.ie specialises in providing homecare and community services nationwide. Our services include home help for as little as 1-2 hours per day and up to a 24 hour nursing care package. Our services include but are not limited to; disability care, paediatrics, mental health, dementia/Alzheimer’s, IV therapy in the home and older person services. We provide a nationwide service with offices in Dublin, Cork, Galway & Dundalk, Freefone 1800 400 900 www.myhomecare.ie
Homecare Independent Living (HCIL)
Homecare Independent Living (HCIL) is a national leader in providing homecare services to clients, enabling them to continue living with dignity and independence, in their own homes. Our services include 24 hour domiciliary care, peripatetic care, floating support and nursing, as well as respite care.
Supported by a team of over 1,000 staff and more than 20 years in the market, with a reputation built on trust, quality and innovation, our clients are at the center of everything we do at HCIL.
Be Independent Home Care
Be Independent Home Care is a Nurse Owned and Managed Home Care Company. Our team of qualified and supervised Home Care Assistants operate in homes throughout Dublin. We are approved HSE Homecare Providers and our team of Care Assistants are fully trained, reference checked, insured and Garda Vetted and work in strict adherence to our policies, procedures and guidelines.
We recognise that each one of our clients has individual needs and so tailor our services to each client by carrying out a full initial needs assessment. Often our clients simply need help with things like washing, dressing, mobility assistance or meal preparation and as our home care services range from just a few hours a day up to overnight or full time care, this allows you to decide how much support you require.
The Multi-Disciplinary Team (MDT) comprises of a group of clinical professionals with specific expertise in MND who work in a hospital and community setting. The IMNDA links in with these healthcare professionals but they are not employed by us.
They include; Neurologist, Occupational Therapist (OT), Public Health Nurse (PHN), Social Worker, Physiotherapist, Speech & Language Therapist (SLT) Dietician, Counsellor and GP. They work as an integrated unit and their aim is to provide flexible and rapid accessible care for people with MND, their families and carers. The type of multidisciplinary expertise required by people with MND will vary depending on the stage of the illness. They can help with difficulties with every day things such as personal care, climbing the stairs, mobility support etc.
More information on the role of the Multi-Disciplinary Team can be obtained in the ‘Everyday Activities’ section in Your Personal Guide to Motor Neurone Disease
The HSE provides all of Ireland’s public health services, in hospitals and communities across the country. For more information about the HSE and the services it provides along with your entitlements, please visit www.hse.ie
HSE list of Health Centres
Diagnosis of a fatal illness with a shortened life expectancy can lead to significant stress. Underlying relationship or marital problems can be uncovered as a result of the stress of illness. Appropriate referral to a qualified counselling service is essential for people with MND and families experiencing such difficulties.
The IMNDA provides funding for counselling sessions for registered clients. For more information, contact the office on Freefone 1800 403 403
The IMNDA also offer a grant for Bereavement Counselling for two family members or carers of an IMNDA client. For more information, contact the office on Freefone 1800 403 403
+Caring for Carers
Family Caregivers Support Program 2019
We are delighted to announce that thanks to the success of our Drink Tea for MND campaign, we are unveiling a fantastic new programme aimed at our primary family caregivers available for 2019. A “family caregiver” is anyone who provides any type of physical and/or emotional care for someone with MND who is being cared for at home. There are different types of family caregivers:
- Adult children
- Family members
We hope that this new Family Caregiver Support Program will be of benefit to carers right across Ireland over the coming months. We truly respect and appreciate the enormous impact that caregivers have on the lives of their loved ones on a daily basis.
For more information about the programme please see our booklet HERE. We have implemented a range of new initiatives for family caregivers including:
- Respite (both day and night)
- Counselling including bereavement counselling
- Funding towards holistic therapies to give you some much needed ‘me time’
- Funding towards everyday household duties such as cleaning
- Transport funding for families who may struggle in meeting the cost of travelling to medical appointments
If you or your main caregiver would like more information on the Family Caregiver Support Program, please do not hesitate to contact Johanna, our Information and Support Officer, on (01) 871 7800 or email firstname.lastname@example.org and put Family Caregiver Support Program in the subject line.
*These funds are limited and only available in 2019
Caring for Carers , is a new website dedicated to carers and family specifically caring for those with palliative care needs. The website consists of 8 different sections and contains videos, downloads, links and lots of practical information to support family carers as they support a person who needs palliative care.
Caring for Carers was created by a team led by Professor Peter Hudson from Queen’s University Belfast in collaboration with AIIHPC and a working group made up of family carers and former carers, carer organisations, health and social care professionals and charities. The site is hosted on www.thepalliativehub.com an all-island gateway to palliative care information. For more see HERE.