IMNDA condemns actions of former CRC board and calls for urgent appointment of charity regulator.

The Irish Motor Neurone Disease Association (IMNDA) condemns actions of former CRC board and calls for urgent appointment of charity regulator. The IMNDA is shocked and appalled at hearing that monies from fundraising were used to top up the salary of the former CRC CEO.

The IMNDA would like to clarify where the money donated to the IMNDA goes and to urge supporters to stick with us, as we depend heavily on fundraising to continue to provide vital services and support to people living with MND.

We currently raise around €1 million a year from donations and fundraising. This money goes to funding our key services including home visiting by our two MND Nurse Specialists , financial assistance towards home care , providing specialist medical equipment free of charge to our clients, supporting research into the causes and treatments of MND and our freephone Helpline & Information service for clients.

We do not receive any funding for our two nurse positions, we are very open about this fact and we campaign heavily to keep these positions as our clients rely heavily on this service.

We do receive some government funding towards the salaries of our staff. The board wish to confirm that all payments to management and staff are at the relevant pay levels befitting their position and we can confirm that no funds have been used to top up any roles or positions within the organisation. Our audited accounts are available for public record. For more information please contact the IMNDA on 1800 403 403 or email

Without the generosity of the public we would not be able to provide our vital services. Please continue to support people with MND.