October 21st, 2020

Here are some details of a very exciting and worthwhile survey for all people living with ALS/MND and their caregivers. People from all across Europe are taking part to give their opinions to help guide drug development and services for ALS/MND. Be a part of it – and let’s make change happen together!

Please find the information leaflet outlining all the details about the survey below along with a link for the survey.

The survey will run from now until Friday 4th December and findings are being compiled by the Research MND Team in Trinity College Dublin led by Prof Orla Hardiman.

It takes just over 30 minutes to complete, but we would massively appreciate your time and feedback. If you have any questions or want to find out more please contact Mark Heverin on 

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