June 21st, 2022
Lights On for Motor Neurone Disease
Going Green for 21st June Global MND Day
Today, the 21st June, is Global ALS/MND Day. Every year the International Alliance of ALS/MND Associations marks 21st June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe.
ALS/MND is a global problem. It does not discriminate on the basis of race, ethnicity, socioeconomic status or region. There are people living with ALS/MND all over the world. For every person diagnosed, the impact of the disease will be forever felt by their loved ones.
“As we mark this Global MND Day 2022, we want to mark 21st June as a special day of recognition. Along with other organisations across the world we are collectively acknowledging the enormous impact that Motor Neurone Disease has on people and their families.
Using solstice day in this way, we collectively hope that there is a “turning point” for those with this disease. Working collaboratively with our partners – researchers, clinicians, healthcare professionals we collectively commit to search for the cause, treatment and cure for Motor Neurone Disease,” said Lillian McGovern, CEO IMNDA.
To mark this significant date in the MND diary and in support of over 400 people living with the disease in Ireland, well-known buildings and monuments across Dublin and Ireland will be lit up in Kelly Green, the colour of the Irish Motor Neurone Disease Association (IMNDA).
1) Farmleigh Water Tower, Phoenix Park
2) The Phoenix Monument, Phoenix Park
3) The Casino at Marino
4) The Wolfe Tone Monument, St. Stephens Green
5) The Rock of Cashel
Lighting up these monuments on this day allows us to recognise that patients, carers, researchers, healthcare workers, volunteers and many others are not alone in the fight against MND. Together we are stronger and one day we hope to see a world free of MND.
Photos will be sent to all picture desks by Garrett White
For more information, please contact Maeve or Derbhla on firstname.lastname@example.org or call 083-0125472/ 083-014 7549
Notes to Editor:
Motor Neurone Disease (MND) is a progressive neurological condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting. MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.
The Irish Motor Neurone Disease Association (IMNDA) is the only organisation of its kind in this country. It was set up in May 1985 to provide care and support to people with Motor Neurone Disease, their carers, families and friends. There are currently nearly 400 people living with MND in Ireland. MND is often referred to as the 1,000 day disease as most people die within 1,000 days of being diagnosed.
The IMNDA provides specialised services for people affected by this debilitating disease such as equipment on loan, financial assistance towards home help, funding towards counselling, advice and home visits from one of 4 MND Nurses. In order to provide these vital services the IMNDA depends heavily on the generosity of the public and supporters of the association who generate over 83% of its income.