News - IMNDA %

News

24 Hour Football Tournament

July 28th, 2021

Michael McDermott along with Keywords Studios are organising a 24 Hour Football Tournament on 21st August at Nord Anglia International School in Dublin to raise funds and awareness of MND, for more on his event go to here

The organisers of the 24Hour Football Tournament will be streaming the event live on Twitch on the 21st August, where there will be spot prizes up for grabs to those who log in and donate via this platform, more information to follow…


The Ann Gilmour Shield, on 25 July 2021

July 23rd, 2021

The Ann Gilmour Shield, on 25 July 2021
 
The inaugural Ann Gilmour Memorial Shield soccer match will be played between Ardcroney FC and Ballymackey FC on Sunday July 25th in Ardcroney at 2pm.
 
Ann passed away on April 25th in 2016 from Motor Neurons Disease and fought a brave battle against against the illness and was supported all the way by her husband Jamie and her loving family.
 
Jamie has a long association with both soccer clubs having coached and lived in Ardcroney the past 20 years and more recently coached at Ballymackey.
We are hoping to raise much needed funds for The Irish Motor Neurones Disease Association between now and Sunday July 25th.
 
The Event organisers would appreciate every like, share, comment, retweet and off course donation towards The Ann Gilmour Memorial Shield.
 
For  more visit here 

ALS/MND Patient Fellows Program

July 22nd, 2021

ALS/MND Patient Fellows Program
Bringing People with ALS/MND and Caregivers Into The Scientific Discourse
Have you ever wondered what the Patient Fellows Program for the International Symposium is all about? Are you interested in connecting with 1000+ researchers?
Please listen to the video below from past fellows, Philip Green and Gwen Peterson, to hear what the Patient Fellows Program is all about!
Once you have had a chance to watch the video, please encourage people living with ALS/MND to apply to be a Patient Fellow this year. This is a global program and we would encourage applicants from anywhere, however, the program is only offered in English.
To apply for this programme, visit here https://www.alspatientfellows.org/
Applications for 2021 are open as of 5th July
Deadline for applications is the end of the day on Friday, 20th August.

Prize Home Kilkenny

July 20th, 2021

Prize Home Kilkenny is organising a house raffle where you can win a home in Kilkenny, plus a cash prize of €20,000, all while donating to the Irish Motor Neurone Disease Association!

The great news is that €100,000 from the tickets’ earnings will be donated to help support the association’s activities and the families that need help dealing with immense costs that come along with this disease.

All you have to do is to buy your ticket here

Make sure to follow them on social and show some support too for more visit here  

 


The Henley Mermaids

July 19th, 2021

The Henley Mermaids are a group of women connected by swimming and they are taking on the Bristol Channel from Ilfracombe in North Devon to Swansea in Waleson on 20th July.

If the Mermaids successfully complete the Bristol Channel, they will be the first women only team to complete it.

With a distance of 25 miles between Ilfracombe and Swansea (as the crow flies), the Bristol Channel is renowned for its strong tidal forces which could easily add 10+ miles onto the distance that the ladies will have to cover, not to mention the colder temperatures of the Irish Sea, possibly swimming in the dark, dealing with jellyfish, and all whilst swimming through busy shipping lanes of the Bristol Channel.

With lots of training to get done to rebuild fitness for this challenge, the ladies are excited and nervous in equal measures, but most of all are delighted to have the opportunity to raise much needed funds in collaboration with SunriseForBrainConditions.org of which the IMNDA is absolutely delighted to be part of.

The very best of luck ladies and thank you so much for all you are doing for people living with Huntington’s Disease, Parkinson’s Disease, Motor Neurone Disease and Multiple Sclerosis.

Foe more on this event, please visit here

 


Win a signed Young Riders jersey from 2020 Tour de France Winner Tadej Pogačar!!

July 15th, 2021

This amazing prize for all cycling fans along with a whole host of other amazing prizes are up for grabs over the next couple of weeks thanks to our fundraiser Malcolm McGrath who has organised this on-line event to raise funds for #imnda and awareness of #MND as Malcolm’s wife Sinead was diagnosed with MND just last year.
 
Listed below are all the wonderful prizes that he has on offer! For more on his story and to support this event, please go to https://www.idonate.ie/raffle/Raffle4IMNDA
RAFFLE4IMNDA – JERSEY SIGNED BY TADEJ POGAČAR
 
FIRST PRIZE – SIGNED JERSEY
 
Lots of spot prizes also, including:
€250 Monart Spa Voucher
€50 Cycle Superstore Voucher
€50 Cigala Cycling Voucher
2 month gym membership for The Maldron Hotel in Wexford
1-2-1 training session with personal trainer for 1 athlete to train for Iron Man (conditional spot prize for entrants taking part in Iron Man)
 
EARLY BIRD OFFER: Purchase your tickets before July 31st and be entered into a separate draw to win an OPPO A54 (5G) Mobile Phone from Three Ireland
 
For Terms & Conditions see http://www.lochdara.com/raffle4imnda/terms.html

Community Hub

July 13th, 2021

Online MND Support

The IMNDA are delighted to announce a new online community hub. Our Community Hub is a safe and supportive online discussion site for people affected by Motor Neurone Disease (MND), their carers and families.

  • Looking to discuss your experiences with other people?
  • Interested in finding, receiving and providing support?
  • Want to connect with others at a time convenient for you?

Our community page allows you to post questions, share tips or advice, and interact with people with MND and their loved ones from around the country.

Registration is free and your contact details are kept confidential. You can submit your own questions and use the answers provided by the community to help support you with MND. You will find our online community hub here at http://community.imnda.ie/

Once registered, you will have access to the following services:

Forums

Our forums can be read by anyone, but in order to interact with others and post messages of your own, you will need to register with this site.

Blogs

A blog is a shared online journal where people can post diary entries about their personal experiences. We will also share entries by health professionals and those involved with research.

Connect

Reach out to people living with MND. Registered members can connect to freely discuss topics in a private and safe area.

The online community is open to people affected by Motor Neurone Disease and provides a place to connect, and find support in a safe space. For more see: http://community.imnda.ie/


A Race Against Time- Noel Kavanagh

July 6th, 2021

A Race Against Time
FROM LIVING THE DREAM TO LIVING WITH MND
It could be said that Noel Kavanagh has led many lives. His career as a vet, developer of animal vaccines, contributor to international publications and conferences would make for a full life, but this energetic, high achiever has done a lot more.
Living in Oldcastle, Co Meath, a multi-talented sportsman, he had successes in rugby, hockey, athletics, squash, golf, and racing motorcycles and Formula Ford cars competitively.
His interests have been shared with his wife Caroline, daughters Kirsten and Naomi and their families who have enjoyed many years of water sports on his series of boats. Holidays on the water in France and cruising from there to Italy and Mediterranean islands, as well as trips worldwide to watch rugby matches and speak at conferences have added to his rich life. He and his family share their amusing stories showing their appreciation of a life well lived.
What a tragedy then, for a man who has so much more to give, to have been struck down with Motor Neurone Disease. The diagnosis was made in 2018 on his 73rd birthday. He started to write the book then, and against all odds completed it in April 2021.
Now, coping with the challenges of this debilitating disease, with searing honesty, his book finishes with a sharing of these last three years. His voice may be gone, but he still has plenty to say. He is still alive.
Proceeds from the sale of this happy, yet heart-rending book, will go to support Research Motor Neurone (RMN).
Further donations to the Irish Motor Neurone Association (IMDA) may be made at www.idonate.ie/NoelKavanagh

Meath – London Cycle

June 28th, 2021

Diarmuid Brennan will be raising vital funds for the Irish Motor Neurone Disease Association (IMNDA), in memory of Ruth Staines who lost her battle to MND this year, she was also partner to Alisdair Anderson, “Incredible Cycle Dublin to Spain”.
This July, Diarmuid will cycle from  his home in Meath over to London (roughly 550km) in order to raise essential funds for the IMNDA. He will be cycling in solidarity with Alisdair Anderson who is currently on an incredible 2,750km trip to Nerja, Spain in memory of their friend Ruth. Alisdair, Ruth’s partner showed the utmost of care, compassion and dedication during the last year of her life, his story is one Diarmuid urges you to read and support.
Everything raised on the cycle goes directly to IMNDA which provides necessary home care nursing, equipment, and counselling for those living with Motor Neurone Disease (MND).Diarmuid has never taken on anything like this before but he’s really looking forward to the challenge. He will post any training and updates so please get involved, any donations are hugely appreciated. For more go to his page here


We are Hiring!

June 23rd, 2021

Title of post:               Corporate Fundraising Executive

Organisation:             Irish Motor Neurone Disease Association (IMNDA)

Reporting to:              National Development Manager

Contract:                    2-year contract initially

Location: This is an office-based role. However, due to Covid-19 the team is working remotely. Once restrictions are lifted office presence will be required with hybrid working under consideration.

The office is based at Unit 3, Ground Floor, Marshalsea Court, 22/23 Merchants Quay, D08 N8VC.

Who we are

The Irish Motor Neurone Disease Association (IMNDA) supports people living with Motor Neurone Disease (MND), their families and carers across Ireland. Vital services include home visits from four specialist MND nurses, funding towards home care hours and the supply of specialised equipment on loan. On average over 80% of the IMNDA’s income comes from fundraising and donations. The Association has grown over recent years, raising more funds and supporting more families.

Role Overview

Reporting to the National Development Manager and working as part of a small team this is an exciting new role of strategic importance to the development of the IMNDA’s corporate income. The Corporate Fundraising Executive will be directly responsible for developing and implementing the IMNDA’s Corporate Fundraising Programme and building on previous and current corporate support.

Key Responsibilities:

  • Deliver ambitious fundraising targets as a key member of the fundraising team.
  • Revive relationships with lapsed corporate donors and manage the cultivation and stewardship of new prospective supporters.
  • Undertake thorough Charity of the Year research, creating a calendar of key dates.
  • Be the main contact for all Corporate fundraising; from company events and donations to CSR applications and pitches.
  • Adapt and deliver all IMNDA annual events and campaigns to a Corporate market.
  • Keep in regular contact with corporate donors to develop strategic partnerships and funding relationships.
  • Work closely with PR/Comms Executive in the compiling of impactful and professional corporate materials in line with the ethos of the IMNDA.
  • Develop and submit persuasive proposals for corporate sponsorship for secure funding towards the IMNDA’s various support services.
  • Research all philanthropic prospects through Trusts, Foundations and Grants and complete applications as required.
  • Compile and share detailed reports regularly with the National Development Manager identifying areas for leverage and opportunity.
  • Attend events and conferences to build the IMNDA’s profile within the corporate sector and identify opportunities to present IMNDA’s work to prospective and existing donors.

General:

  • To ensure confidentiality on all matters and information obtained during the course of employment.
  • To present and act in a professional manner at all times.
  • Ensure compliance of charities regulation, data protection acts, governance and best practice.
  • Keep up to date with the current issues and developments in the NFP Sector.
  • To assume responsibility for his/her own professional development and safe work practice.
  • Establish memberships and liaise with local bodies, agencies and other associations. to ensure industry best practice.
  • Undertake training as necessary.
  • Provide occasional support if another team member in the department has an urgent need.

This job description is not exhaustive. It merely acts as a guide and may be amended to meet the changing requirements of the Association at any time after discussion with the post holder.

Personal Specification

Essential:

  • 3 years relevant experience, with proven track record of securing corporate donations/partnerships.
  • Experience of setting and working to budgets, deadlines, targets and plans.
  • Ability to work as both a key member of a team as well as proactively working alone.
  • Flexible especially when having to fulfil an unexpected deadline.
  • Excellent relationship management skills with proven experience in account/ customer/donor management.
  • Proven experience in developing new business.
  • Excellent communication and presentation skills – both written and verbal.
  • Strong empathy and compassion.
  • A team player who will always represent the IMNDA with the utmost professionalism.
  • Strong organisational skills and attention to detail and ability to manage multiple projects and demands.
  • Excellent attention to detail.
  • Experience inputting data and generating reports using a CRM.

Desirable:

  • Previous experience working in a not for profit environment.
  • Experience using CRM Salesforce.
  • Experience completing successful grant applications.

Contract

This is initially a 2-year contract which includes a 6-month probationary period.

Benefits include:

  • 25 days annual leave.
  • Company pension scheme on completion of probationary period.
  • Access to VHI Employee Assistance Programme.
  • Flexible working environment.

If you would like to be considered for this position, please forward a cover letter stating your suitability, along with your CV to Gemma Watts: gwatts@imnda.ie

Closing date for applications is 4pm on Friday 23rd July 2021.

Late applications will not be considered. Only those selected for interview will be contacted.

Salary negotiable, depending on experience.


Music4MND

June 21st, 2021

Music4MND is an online event bringing musicians, singers, and poets together to perform to raise awareness and funds for Motor Neurone Disease. This wonderful event is taking place on MND Global Awareness Day – Monday 21st June at 8pm on You Tube Live so please tune in – www.music4mnd.ie for what promises to be a highly entertaining event. Thanks to everyone who is taking part!


Vhi Women’s Mini Marathon 2021

June 8th, 2021

We’re delighted to announce that the Vhi Virtual Women’s Mini Marathon is now open

We need you! Will you join Team IMNDA and help raise vital funds to support people living with MND?

Whilst we can’t meet up to run/walk together in Dublin’s City Centre, you can join us virtually from ANYWHERE IN THE WORLD!

Enter at www.vhiwomensminimarathon.ie and walk, jog or run 10k on 19th September 2021!

Exclusive Finishers T-shirt and medal for all entrants.

See you at the Virtual Start Line.

#PowerOfMe


Walk While You Can 2021

May 24th, 2021

Every day the most remarkable people face the toughest of battles. We will never forget what Fr Tony Coote did for Motor Neurone Disease. In July 2018, five months after his own diagnosis of MND and in a wheelchair, he completed an extraordinary walk from Donegal to Cork, a distance of over 550 kilometres

It took four weeks on the road travelling from town to town in all weather conditions but in the end an incredible €700,000 was raised for the IMNDA and MND Research. From these miraculous funds, we were able to employ a fourth nurse. That’s the power of a walk and one man’s incredible strength and determination!

Because of Tony we hired a 4th nurse, because of you we can sustain this vital service.

Your community walks will keep our nurses in the communities where they are needed most.

This September 11th, it’s up to all of us to ensure that Walk While You Can continues to raise urgently needed funds for people living with MND.

So let’s walk while we can, where we can and continue what Tony started!

Together we can make a difference and keep Fr Tony’s legacy going. He himself found hope in times of adversity so we must do the same.

Register to Walk by Clicking Here.