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MND, SELF-ISOLATION AND ME (Valerie O’Carroll)

April 8th, 2020

Valerie O’Carroll is from Dublin and living with MND. Valerie was the face of our Sponsored Silence this year and what an impact she made. Her colleagues in Ballymun Child & Family Resource Centre all got behind the campaign and we are incredibly grateful. They are all like a big huge family. Valerie is now working from home, so we asked her how she is getting on during this period of self isolation…

 

 

Well this is day 22 in my isolation; to say it’s been difficult is an understatement! A least I’m working from home which is definitely helping my headspace.

I work in the community and voluntary sector so we are still looking after vulnerable clients who are helping me to focus on other things and other people.

So, what do I do to fill in the time when I’m not working….

Siel Bleu is a fantastic group who provide activities for those who can’t move that well, they do chair exercises for people who don’t have a lot of mobility. http://www.sielbleu.ie/ they are providing free classes on Facebook at 11am and 2pm every day.  Every day I’m sitting in front of my iPad waiting on this class to start. That keeps me busy for about 30 minutes.

Siel Bleu Ireland is the first specific effort to promote exercise among older adults and patient groups in Ireland, with the aim of improving overall wellbeing. They design programmes with a preventive approach that benefits all adults, at any age, and at any stage of their lives.

Boredom

This is a big issue, eating because of boredom, it is terrible I reckon I’ll be at least 2 stone heavier when this is over, but I’ll tackle that when it is all over.

I‘m really trying to distract myself from this, but it is very hard at times, so most of the time I just give in and eat.

Board games are good. We have found some that were in the attic when our kids were small they are great, really fun and before you know it 2 hours have gone by!

The other thing I find really good is keeping in touch with friends and also connecting with people you haven’t seen in years is Facebook and Twitter. I would have always given out about these before but now I find them a real life saver at times (but not all the time).

FaceTime

This is something I love doing because I get to see my 5 grandchildren, which always makes my day. I can also talk to my work colleagues and friends.


Community Response Forums- Covid-19

April 7th, 2020

 

There is now a Local Authority Community Response Forum in every local authority area to help all vulnerable members of our communities affected by COVID-19 restrictions.

Each forum will consist of the HSE, the council, county champions, An Post, Community Welfare Service, An Garda Síochána, other State organisations, charities and other stakeholders.

Each forum will provide the following services:

  • Collection and delivery of food, essential household items, fuel, medication in line with guidance
  • Transport to community testing centres, clinical Assessment Hubs, GP and hospital appointments
  • Social isolation, supports, engagement
  • Meals and their delivery
  • Other medical/health needs

Local Authority Community Response Forum helpline numbers:

Local Authority Community Response Number Email
Carlow County Council 1800 814300 covidsupport@carlowcoco.ie
Cavan County Council 1800 300 404 covidsupport@cavancoco.ie
Clare County Council 1890 252 943 covidsupport@clarecoco.ie
Cork City Council 1800 222226  covidsupport@corkcity.ie
Cork County Council 1800 805 819 covidsupport@corkcoco.ie 
Donegal County Council 1800 928 982 covidsupport@donegalcoco.ie
Dublin City Council 01 2228555 covidsupport@dublincity.ie
Dun Laoghaire Rathdown County Council 01 2713199  covidsupport@dlrcoco.ie
Fingal County Council 01 890 5000 covidsupport@fingal.ie
Galway City Council 1800 400 150  covidsupport@galwaycity.ie
Galway County Council 1800 928 894 covidsupport@galwaycoco.ie
Kerry County Council 1800 807 009 covidsupport@kerrycoco.ie
Kildare County Council 1800 300 174 covidsupport@kildarecoco.ie
Kilkenny County Council 1800 500 000 covidcommunity@kilkennycoco.ie
Laois County Council 1800 832 010 covidsupport@laoiscoco.ie
Leitrim County Council 071 9650473 covidsupport@leitrimcoco.ie
Limerick City & County Council 1800 832 005 covidsupport@limerick.ie
Longford County Council 043 3344255    covidsupport@longfordcoco.ie
Louth County Council 1800 805 817   covidsupport@louthcoco.ie
Mayo County Council 094 906 4660  covidsupport@mayococo.ie
Meath County Council 1800 808 809 covidsupport@meathcoco.ie
Monaghan County Council 1800 804 158 covidsupport@monaghancoco.ie
Offaly County Council 1800 818 181 covidsupport@offalycoco.ie
Roscommon County Council 1800 200 727 covidsupport@roscommoncoco.ie
Sligo County Council 1800 292 765 covidsupport@sligococo.ie
South Dublin County Council 1800 240 519 covidsupport@sdublincoco.ie
Tipperary County Council 076 106 5000 covid19@tipperarycoco.ie
Waterford City and County Council 1800 250 185 covidsupport@waterfordcouncil.ie
Westmeath County Council 1800 805 816 covidsupport@westmeathcoco.ie
Wexford County Council 053 919 6000 covidsupport@wexfordcoco.ie
Wicklow County Council 1800 868 399 covidsupport@wicklowcoco.ie

MND, Self-Isolation and Me (Mairead Coleman)

April 2nd, 2020

Mairead Coleman is living with MND and can no longer speak. Mairead was our Sponsored Silence Ambassador in 2019 and what a formidable one she was!  We are so grateful for the awareness she has generated for people living with MND. She is one of the most positive, focused and caring people we know. She has a unique ability to see the good in everything.

So, we asked Mairead how she is getting on during these difficult times.

Over to you Mairead…

 

 

I’ve been staying at home now for 3 weeks, no visitors allowed at any time, family or friends etc.

Michael my husband has been doing any necessary shopping etc since then. His company decided to take all reps off the road so he’s been working from home for the last two weeks.  Hannah my daughter is home from college also.

For me, I’m quite enjoying having Michael and Hannah at home with me albeit Michael is busy working and Hannah is doing college assignments.

I’m still able to prepare meals so we all sit together at mealtimes. In the evenings,  we enjoy watching TV or movies and chatting to each other.  

I potter around the house and do a few easy chores each day. The weather is great at the moment which makes being at home a whole lot easier.

I keep in touch with my family through Skype. For me its great that I have a medium where I can still communicate by typing (I can no longer speak due to MND) and my family can chat away and seeing them especially my Mum and Dad, knowing they’re ok is comforting.

I keep in touch with my friends through WhatsApp and text. We have little friend groups on WhatsApp and we share funny stories and videos etc. This keeps us all in good humour.

I’m usually a very social person so before Covid-19 I would have met with family and friends a couple of times a week.  I quite enjoy having this time to myself at the moment.  Its lovely not having to be anywhere at a certain time or place such as appointments etc. I feel more relaxed and rested and I’ve realised that I needed time out, so I’m enjoying it very much. 

We all have to do our part to slow down and stop the spread of the Coronavirus.  Its frightening to see and hear all the stories where the virus has taken family members, friends and loved ones so we must take the advice of the health professionals and our government and keep our fellow country folk safe and well.

This won’t last forever so let’s all join together, stay at home, enjoy your family.  Take time to rest and recharge. 

Thank you to all the medical staff who are working so hard to save patients and putting their own lives at risk. Thanks to all the people who we don’t see, working away in the background,  in offices, shops etc.


Coronavirus (COVID-19)

March 25th, 2020

What you need to know about COVID-19

COVID-19 is a new illness that can affect your lungs and airways. It’s caused by a virus called Coronavirus.

It can take up to 14 days for symptoms of Coronavirus to appear.

Social distancing measures continue to be paramount and every citizen is being asked to take the necessary precautions.

 

 

 

Anyone with concerns that they may have come into contact with a person who has Covid-19 should contact the HSE Live Helpline on 1850 24 1850. If you are unwell with cough, especially with respiratory symptoms (e.g. cough, high temperature, shortness of breath, difficulty breathing, fever) you should isolate yourself immediately and phone your GP.

 

Some helpful answers are here: Corona F

For the most up to date information and advice on Coronavirus, please go to:


Big Life Fix Features Young Mum with MND

March 24th, 2020

Our dear friend Roisin Foley is living with MND and featured on RTE’s series Big Life Fix to see what Marino Software had up their sleeves to help the mother of three.

The team at Marino Software worked with Róisín to develop the technology that will allow her to communicate after she has lost her voice – in her own voice.

We have had a lot of people asking about the software, so all you need to know is here 

 


Self Isolating Poster

March 20th, 2020

Downloadable poster available here for those who may wish to self isolate.

The poster can be used to let those who are visiting your home know that someone here is self-isolating and to take the necessary measures when visiting or delivering something.

Click the button below.


Download Poster


Wedding Favours

March 18th, 2020

Is your special day approaching? Show your support for the IMNDA on your wedding day and purchase our beautiful wedding favour cards. The cards are business card sized and folded over. They look lovely at each place setting. Available all year round!

The message inside the card reads:

Thank you for being part of our special day.
In honour and appreciation of our guests a contribution has been made to the Irish Motor Neurone Disease Association

Buy yours today for just €2 a card and we will get them in the post straight away!

Wedding card


The Good Run Online Charity Challenge 2020

March 13th, 2020

In aid of Research Motor Neurone and IMNDA

The Good Run is a charity fun run that has taken place on Good Friday for the last 5 years. Over €84,000 has been raised by The Good Run to date which has gone towards supporting the fight against Motor Neurone Disease. We are asking you to join us in continuing this tradition by accepting our Good Run Challenge this Easter Monday the 13th of April and helping us to raise much needed funds for Research Motor Neurone and IMNDA.

No crowds? No problem!

Get active with us this Easter Monday.

For those of you who can get out and run, The Good Run will be hosted online this year. For those who can’t, you can still get active for MND from your home or garden by joining one of the other events we have organised on Easter Monday.

We could all do with A Good Run, A Good Sweat or A Good Stretch during these times- Join us in any (or all!) of the activities organised this Easter Monday and help support the fight against Motor Neurone Disease.

Share a sweaty selfie,  a screenshot of your completed route or a video of how you and the family got active using the hashtag #thegoodrun2020 – this way we can all feel part of the event.

Help support the fight against Motor Neurone Disease this Easter Monday!

Register for any of these events by Clicking Here and donating to our Everyday Hero page.

Facebook: Tricals Cead Mile Failte

Instagram: The Good Run 2020

​https://www.thegoodrunireland2020.com/


Yoga for MND

March 9th, 2020

On April 26th at Loughcrew Estate Meath yoga will take place in aid of IMNDA.

It will take place from 2pm until 3pm, ALL WELCOME. For more information contact Vickie- 087 903 9236 or Sheila 087 143 2388. Please bring a mat/blanket. This event is part of the awareness campaign taking place in America #4youiwillfight.


Sunrise up Croagh Patrick 2020

March 9th, 2020

Next Event – 27th June 2020 – Please support this annual Sponsored Climb Up Croagh Patrick or Walk nearby to raise much needed funds for Neurological Disease Specialist Care.

Walk & Climb: 9.30am Saturday June 27th 2020 Climbers and Walkers to meet at the Visitors Centre at Croagh Patrick for check in. Please check in & out at the Sunriseupcroaghpatrick desk at the Croagh Patrick Visitors Centre before and after the climb or walk. (Bring some coins for the Car Park).

Climb: When we say climbing, its not vertical, no ropes, no scrambling, with a bit of care, it is within the reach of most people (click the video link here to see what it is like).

Walk: For those who would prefer to walk rather than climb we will also have a 5Km or up to 10Km low level walk near Croagh Patrick.  See the choice of walks on the Murrisk website: http://www.murrisk.ie/T-VillageWalks.html.

To register your interest for the climb or the walk click here.

This event takes place to raise much needed funds for Young Parkinson’s of Ireland Association; Huntington’s Disease Association of Ireland; The Irish Motor Neurone Disease Association.

For further info please contact the event organisers on sunriseupcroaghpatrick@gmail.com

All participants are encouraged to set up an iDonate fundraising page.

For fundraisers who want to create a page,

1) they go to https://www.idonate.ie/createfundraiser.php

2) Select charities: all or one of: Young Parkinson’s of Ireland Association; Huntington’s Disease Association of Ireland; The Irish Motor Neurone Disease Association

3) Select page type -> Event

3) Select date of event as June 27th and then click Select event under Sunrise Up Croagh Patrick 2020

4) Continue through following self-explanatory steps to complete setup


Dublin City Marathon 2020

March 9th, 2020

Are you taking part in this October’s hugely popular KBC Dublin City Marathon?

If so we would love to hear from you! Each year our wonderful supporters raise over €25,000 for people with Motor Neurone Disease and we want to keep this going in 2020.

If you are pounding the streets of Dublin this autumn would you like to do a bit of fundraising alongside your training?! We would be delighted to have you on Team IMNDA!

Just email fundraising@imnda.ie or call 01 873 0422 and we will send out your sponsorship pack.

Thank you so much for your support!


24 Hour Spinathon Upperchurch to Tokyo

March 9th, 2020

Calling all spinners!!!

Upperchurch-Drombane GAA Club need you! To cover the distance from Upperchurch to Tokyo in 24 hours; approximately 480 participants are needed! Each expected to cycle for 60 minutes.

Funds raised to Upperchurch-Drombane GAA Club and the IMNDA.

It will be taking place on Saturday 25th / Sunday 26th of April.
The location is the Community Centre in Upperchurch Village, Thurles, Co. Tipperary. All welcome.

Email spinathon2020@gmail.com or call 087 7459506 / 0877412420


Annoucement: Thank You Event Postponed

March 9th, 2020

Announcement: Due to the ongoing Coronavirus outbreak, we have decided it’s in the best interests of our MND community to postpone our Thank You event scheduled for March 27th.

Keep an eye on our website and social media channels for further updates.

 

Thank you


Cheltenham Preview Walkinstown

February 17th, 2020

 

On Thursday the 5th of March in the Cherrytree Pub in Walkinstown, a Cheltenham preview will take place in aid of IMNDA. Tickets €10 on the door.

 

 


12 O’Clock Hills Sponsored Walk

February 14th, 2020

12 O’Clock Hills Sponsored Walk takes place on Saturday the 7th of March in Kilkishen Co Clare at 11am all in aid of IMNDA.

All welcome along. Please meet at the Belvoir Trail Head Car Park before the walk starts at 11am.
Sponsorship cards are available for all participants, please contact the event organiser Paraic at 087 2129877.