January 26th, 2021
Sometimes Silence Speaks Volumes
Support people with Motor Neurone Disease this February
This February we are once again running our sponsored silence campaign #Voice4MND. All we ask is that you stay silent for a minimum of 30 minutes so you can experience what it would be like to lose your voice. Imagine one hour, imagine one day, imagine one week without your voice. We want you to give up your voice so you can experience what it is like for someone with Motor Neurone Disease.
More than 80% of people living with MND will experience some form of speech difficulty during their illness – some will lose their voice completely.
All you need to do is pick a day and duration for your silence, register and share!
Take on our challenge this February and lose your voice so others can be heard.
This year our campaign is fronted by Patricia Yarrow and Madeline O’Connor. They wanted to share their stories so that others could understand the impact of what life is like when you lose your voice.
Patricia Yarrow (70) from Cork was diagnosed with MND last September. This time last year, she had never heard of Motor Neurone Disease. The diagnosis devastated Patricia, she was forced to close her psychotherapy practise as her voice had deteriorated so much.
“Sometimes it is assumed I am drunk or have an intellectual disability, but whatever the assumption, the word I find that fits the experience for me is “diminishing”. I feel ‘less than’ compared to how I used to be and vulnerable, not being able to express or explain myself,” said Patricia.
Madeline O’Connor (65) from Kerry, has been living with MND since April 2020. In September she too had to retire from work, as her slurring voice made it impossible for her to continue her job in the Eir Call Centre.
“What I miss most about losing my voice is being able to have chats with my daughter, Marie and conversations with friends,” said Madeline.
To sign up for our Sponsored Silence just fill out the online registration form. It’s that simple! Spread awareness by sharing your sponsored silence on social media by using #Voice4MND. Nominate friends and families to join you.
You can also donate to the campaign by texting MND to 50300 to donate €2 (100% of text goes to IMNDA across most network providers. Some providers apply VAT which means a minimum of €1.63 will go to IMNDA. Service Provider: LIKECHARITY. Helpline 076 6805278). Alternatively you can Donate Online HERE.
“It is difficult to go out into the community when people don’t understand that I require a little more patience” said Madeline.
Sometimes silence can speak volumes. Take on our challenge this February. Don’t let Patricia and Madeline suffer in silence; don’t let them live without a voice. Lose your voice so that others can be heard.
“My biggest fear around this disease and losing my voice is that people will lose sight of me,” said Patricia.
Please Register HERE today. Thank you.
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