December 19th, 2013
After the recent media speculation surrounding salary top ups, the Irish Motor Neurone Disease Association (IMNDA) would like to clarify where the money donated to the IMNDA goes and to urge supporters to stick with us, especially for those Christmas donations which we depend on to fund our home care payments for 2014.
Motor Neurone Disease (MND) is a progressive neurological condition that leaves people unable to do the everyday things that the rest of us take for granted. Walking, talking and swallowing may become virtually impossible. MND strikes people of all ages and there is no cure. There are currently over 310 people living with MND in Ireland. MND is often referred to as the 1,000 day disease as most people die within 1,000 days of being diagnosed.
The IMNDA provide specialised services for people affected by this debilitating disease such as equipment on loan, financial assistance towards home help, advice and home visits by MND Nurse Specialists. In order to provide these vital services the IMNDA depends heavily on the generosity of the public and supporters of the association who generate over 84% of its income.
In 2012 the Irish Motor Neurone Disease received €267,732 from the HSE, National Lottery and other publicly supported grants. €1,292,586 was raised in 2012 through generous donations and fundraising activities. In 2012 the IMNDA paid €199,814 on salaries and our CEO was paid €65,000. The remainder of the money goes to funding our key services including home visiting by our two MND Nurse Specialists , financial assistance towards home care , providing specialist medical equipment free of charge to our clients, supporting research into the causes and treatments of MND and our freephone Helpline & Information service for clients.
We do not receive any funding for our two nurse positions, we are very open about this fact and we campaign heavily to keep these positions as our clients rely heavily on this service.
As highlighted we do receive some government funding towards the salaries of our staff. The board wish to confirm that all payments to management and staff are at the relevant pay levels befitting their position and we can confirm that no funds have been used to top up any roles or positions within the organisation. Our audited accounts are available for public record. For more information please contact the IMNDA on 1800 403 403 or email
Without the generosity of the public we would not be able to provide our vital services. Please continue to support people with MND this Christmas.