May 28th, 2018
The Irish Motor Neurone Disease Association (IMNDA) is truly saddened to hear of the passing of Jan Battles. The IMNDA wish to offer it’s condolences to Jan’s family, friends and relatives. Jan was an incredible strong woman and our thoughts are with her loved ones at this very sad time.
Jan was diagnosed with MND in 2013 and worked tirelessly for as long as she was able to raise awareness of this degenerative, terminal condition. She fronted our National Awareness Campaign in 2014 and also coaxed Kodaline to headline two nights in Whelan’s to raise funds and awareness.
Maeve Leahy, PR & Communications Executive said; “We are truly heartbroken to hear of this news. Jan was a real force to be reckoned with. She spoke openly and honestly about the true impact of living with Motor Neurone Disease. She bravely fronted our National MND Awareness Month in 2014 and also took on several fundraising initiatives. She was a very courageous woman and will be sorely missed. We would just like to extend our deepest sympathy to her family and friends. May she Rest in Peace.”
Motor Neurone Disease (MND) is a progressive neurological condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting. MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.
The Irish Motor Neurone Disease Association (IMNDA) is the only organisation of its kind in this country. It was set up in May 1985 to provide care and support to people with Motor Neurone Disease, their carers, families and friends. There are currently over 370 people living with MND in Ireland. MND is often referred to as the 1,000 day disease as most people die within 1,000 days of being diagnosed. 1 person dies every 4 days from MND.
For more information please contact:
Maeve Leahy, PR & Communications Executive 01-8730422 or email email@example.com